Support for self-management of cardiovascular disease by people with learning disabilities

TY - JOUR

T1 - Support for self-management of cardiovascular disease by people with learning disabilities

A1 - Young,Anita F.

A1 - Naji,Simon

A1 - Kroll,Thilo

AU - Young,Anita F.

AU - Naji,Simon

AU - Kroll,Thilo

PY - 2012/8

Y1 - 2012/8

N2 - <p>Background. Cardiovascular disease (CVD) is the second most common cause of death among people with learning disabilities (LD), and lifestyle has been linked to risk factors. With a shift towards illness prevention and self-management support, it is important to know how people with LD can be involved in this process.</p><p>Objective. To elicit the perceptions of people with LD, carers and health professionals regarding supported self-management of CVD.</p><p>Methods. A qualitative approach used in-depth semi-structured interviews based on vignettes with accompanying pictures. Fourteen people with LD, 11 carers/care staff and 11 health professionals were recruited and interviewed. Thematic framework analysis was used to analyse interview data.</p><p>Results. In total, 11 men and 25 women were interviewed. All respondents contributed views of self-management with a wide range of opinions expressed within each participant group. Four key themes encompassed: strategies for self-management; understanding the prerequisites for self-management support; preferred supporters and challenges for self-management implementation. Facilitated service user involvement in self-management decision making was highly valued in all groups. Service users wished for co-ordinated incremental support from across agencies and individuals.</p><p>Conclusions. People with LD can be effectively consulted regarding health management and their views can inform service development. Promoting joined-up support across health and social care and families will require investment in resources, education and dismantling of professional barriers.</p>

AB - <p>Background. Cardiovascular disease (CVD) is the second most common cause of death among people with learning disabilities (LD), and lifestyle has been linked to risk factors. With a shift towards illness prevention and self-management support, it is important to know how people with LD can be involved in this process.</p><p>Objective. To elicit the perceptions of people with LD, carers and health professionals regarding supported self-management of CVD.</p><p>Methods. A qualitative approach used in-depth semi-structured interviews based on vignettes with accompanying pictures. Fourteen people with LD, 11 carers/care staff and 11 health professionals were recruited and interviewed. Thematic framework analysis was used to analyse interview data.</p><p>Results. In total, 11 men and 25 women were interviewed. All respondents contributed views of self-management with a wide range of opinions expressed within each participant group. Four key themes encompassed: strategies for self-management; understanding the prerequisites for self-management support; preferred supporters and challenges for self-management implementation. Facilitated service user involvement in self-management decision making was highly valued in all groups. Service users wished for co-ordinated incremental support from across agencies and individuals.</p><p>Conclusions. People with LD can be effectively consulted regarding health management and their views can inform service development. Promoting joined-up support across health and social care and families will require investment in resources, education and dismantling of professional barriers.</p>

U2 - 10.1093/fampra/cmr106

DO - 10.1093/fampra/cmr106

M1 - Article

JO - Family Practice

JF - Family Practice

SN - 0263-2136

IS - 4

VL - 29

SP - 467

EP - 475

ER -