Inherited cardiac Conditions

Press/Media: Other

Period3 Oct 2018

Media coverage


Media coverage

  • TitleScotland gets nationwide nurse service for deadly heart condition
    Media name/outletBHF
    Country/TerritoryUnited Kingdom
    DescriptionPeople across Scotland who are unknowingly at risk of dying from a fatal heart condition can now be better identified and treated thanks to a cardiac nurse service provided by funding from the British Heart Foundation (BHF) and the family of Sir David Frost.

    Miles Frost and David Frost

    This means that for the first time Scotland will have a nationwide service provided by specialist cardiac nurses to support people suspected to have hypertrophic cardiomyopathy (HCM), an inherited heart condition which can cause a cardiac arrest without warning.

    A genetic testing service for HCM has been available in Scotland for 10 years. A year ago, £200,000 of funding from the BHF and the Miles Frost Fund enabled this service to be supported by four specialist nurses and a data analyst whose job it is to support families in the west of Scotland affected by HCM. Now, funding for a similar cardiac nurse service covering the rest of Scotland means the entire Scottish population can get support, information and treatment in their own health board area.

    The latest project, led by Dr Anna Maria Choy, national lead clinician of the Familial Arrhythmia Network of Scotland (FANS), has received £154,000 to cover a population of 2.8 million across the north and east of Scotland. Specialist nurses, working with cardiologists, geneticists and genetic counsellors, will identify people with HCM and provide information, education and psychological support as well as provide life-saving treatment where necessary.
    Producer/AuthorWill Slater
    PersonsAnna-Maria Choy