Research output per year
Research output per year
Description
If you would like a physical copy of this Participant Information Sheet please email the study team on: [email protected].
Title of Study
Assessing awareness of fatty liver disease among clinicians in Scotland: a cross-sectional survey study (ADIPOSE-2).
We are inviting you to take part in a study
You are being invited to participate in a research study (in the form of a questionnaire). Before you decide whether to participate, it is important for you to understand why the research is being done and what it will involve. Please read the following information carefully and feel free to ask us if you would like more information. You do not have to accept this invitation and should only agree to take part if you would like to.
Why we are doing this study
Liver disease is becoming more common globally but people living with the condition are often unaware of it. We wish to gain a greater understanding of the awareness, knowledge and practice of clinicians in the UK regarding certain aspects of liver disease. Therefore, we are undertaking an online survey aimed at clinicians (doctors and nurses), currently caring for patients in primary and secondary care in the UK.
Who is eligible to take part in ADIPOSE-2
Clinicians (doctors (either primary or secondary care, including specialist trainees) and specialist nurses) who are providing care for patients in the UK are eligible to take part in the study.
Do I have to take part?
Participation in the study is voluntary and you are free to withdraw you participation at any time until you submit the survey. To withdraw your participation simply don't complete the survey, you are not required to give a reason for this. However, if you choose to take part and complete the survey, once your survey responses have been submitted, we will no longer be able to
withdraw your responses – because the survey is anonymous it will not be possible for us to be able to identify which response is yours at that point.
What will happen if I take part?
The study is an online survey made up of one set of questions only. After finishing reading this information sheet you will be asked to complete an online informed consent form. You will then be asked questions about your professional role, followed by questions about your awareness, knowledge and current practice regarding certain aspects of liver disease.
Finally, you will be asked whether you want to enter a prize-draw to win one of five, £75 high-street vouchers in return for your participation. If you wish to do so, you will need to enter your email address (if you would rather not enter the prize-draw/ your email address you can still complete the survey without this, and we would still be pleased to have your responses).
IMPORTANTLY we will not collect any personal identifiable or special category data and none of answers will be linked to your email address (should you chose to provide it) – all answers will be completely anonymous.
How long will the ADIPOSE-2 study take?
The study survey will take less than 10 minutes to complete.
What are the possible benefits of taking part?
Once you complete the survey, you will have the opportunity to opt-in to a draw to receive one of five £75 high-street retail vouchers. Opting into this draw is not a requirement for participation. Five participants will be drawn at random to receive one voucher each.
It is hoped that your involvement will help contribute to the development of liver health research and the care of people with liver disease in the future. You will also have the option to opt-in to information about the results and publication of this research in the future.
What are the possible disadvantages and risks of taking part?
Apart from the short amount of time it takes to fill in the survey, there are not any disadvantages or risks involved in taking part in the study.
Who is organising and funding this research?
This study is being sponsored by the University of Dundee. It is being funded by Scottish Society of Physicians. The study is being organised by Professor John Dillon’s research team.
How will my survey data be used?
We will need to use information from you (from your survey responses) for this research project. Information from the survey will be used to measure clinicians’ awareness, knowledge and current practice regarding liver disease and associated medical conditions.
ADIPOSE-2 will not collect any sensitive or personal identifiable information. If you chose to provide an email address this will not be associated with your other survey responses.
Study Results
The results from the study will be made available through the development of reports, peer-reviewed research papers, and presentations. You will not be identifiable in any of the results or any of the publications.
If you wish to receive details of how the study is progressing and research outputs, there will be an option to opt-in to this at the end of the study.
How will my data be collected?
Data will be collected via an online anonymous survey.
How will my survey response data be stored?
All data will be stored on access-protected University of Dundee servers, accessible only to the research team. Your email address will not be stored with your other responses.
How long will my survey response data be stored for?
Email addresses will be deleted as soon as they are no longer required (after the prize draw is completed and study results disseminated).
The remaining study data will be stored for 5 years after the study is completed.
What measures are in place to protect the security and confidentiality of my data?
The study survey is conducted using the Jisc survey platform. Jisc meets International Organization for Standardization 27001 data standards and data held with the survey platform is processed in compliance with GDPR. Further information can be found about Jisc data security here: https://onlinesurveys.jisc.ac.uk/security/
Storage and usage of all data is governed by University of Dundee data protection policies, which are aligned to the General Data Protection Regulation (GDPR) and associated Standard Operation Procedures (SOP). Further information is available at: https://www.dundee.ac.uk/informationgovernance/data-protection.
Will my data be anonymised?
All data is stored anonymously, and it will not be possible for the research team or anyone else to link individual ADIPOSE-2 participants to their responses.
Who will have access to my data?
The surveys are submitted anonymously, and only the research team will have access to the completed surveys.
Will my data be archived for use in other research projects in the future?
Data collected will only be used in this project.
How will my data be destroyed?
The survey data will be securely destroyed 5 years after the survey results have been published.
Where can you find out more about how your information is used?
You can find out more about how we use your information at
https://www.hra.nhs.uk/information-about-patients/ by asking one of the research team by sending an email to [email protected].
What if I am unhappy or if there is a problem?
If you are unhappy, or if there is a problem, please feel free to let us know by contacting the Primary Investigator, Dr Damien Leith ([email protected]) and we will try to help.
If you are not satisfied, you can make a formal complaint to a senior member of the research team.
If you think you have come to harm due to taking part in the study there are no automatic arrangements to get financial compensation.
If you have a complaint about your participation first of all please talk to the researcher.
If you have any concerns about the way in which your data is processed, it is important that you are aware of your right to lodge a complaint with the Information Commissioner's Office – Scotland by calling 0303 123 1115 or emailing [email protected].
Insurance
The University of Dundee is Sponsoring the study. The University of Dundee holds indemnity cover which covers the University’s legal liability for harm caused to participants.
Who has reviewed this study?
This study has been reviewed by, and received favourable opinion from, the University of Dundee Research Ethics Committee.
All processes outlined in this information sheet are included in the study protocol, which was reviewed by the Research Ethics committee.
Who can I contact if I have further questions?
Principal Investigator
Dr Damien Leith
Ninewells Hospital and Medical School,
Dundee, DD2 1SY
Phone: 01382 383017
Email: [email protected]
Privacy Notice
Information Governance – Data Protection
How we use your information
If you choose to provide personal data in response to any of our questions, you should understand that we will hold and process that information in the dataset we generate from the survey responses.
We will retain the raw data from the survey responses for 5 years from the study end date, at which point it will be deleted. We will retain our anonymous analysis and reporting. You are under no obligation to complete this survey.
Personal and special category data
This survey will not include any identifiable or special category data.
Data controller
Should you provide personal data in response to this survey the University of Dundee would be the data controller for this information. This data may be processed by the University’s nominated agents such as software or service providers. Data will be processed using the University’s business systems. These include Microsoft 365 and Microsoft OneDrive.
The University uses an online survey run by Jisc to collect this information. For information on how this service secures your data please see https://www.jisc.ac.uk/online-surveys.
Lawful processing
If you choose to provide personal data in response to our questions, it will be processed by the University on the basis that it is lawful for it to process your personal data, as the processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the University as data controller.
Your rights
If you wish to complain about the University’s use of your information, please contact the University’s Data Protection Officer in the first instance by emailing [email protected]. You may also wish to contact the Information Commissioner’s Office.
Title of Study
Assessing awareness of fatty liver disease among clinicians in Scotland: a cross-sectional survey study (ADIPOSE-2).
We are inviting you to take part in a study
You are being invited to participate in a research study (in the form of a questionnaire). Before you decide whether to participate, it is important for you to understand why the research is being done and what it will involve. Please read the following information carefully and feel free to ask us if you would like more information. You do not have to accept this invitation and should only agree to take part if you would like to.
Why we are doing this study
Liver disease is becoming more common globally but people living with the condition are often unaware of it. We wish to gain a greater understanding of the awareness, knowledge and practice of clinicians in the UK regarding certain aspects of liver disease. Therefore, we are undertaking an online survey aimed at clinicians (doctors and nurses), currently caring for patients in primary and secondary care in the UK.
Who is eligible to take part in ADIPOSE-2
Clinicians (doctors (either primary or secondary care, including specialist trainees) and specialist nurses) who are providing care for patients in the UK are eligible to take part in the study.
Do I have to take part?
Participation in the study is voluntary and you are free to withdraw you participation at any time until you submit the survey. To withdraw your participation simply don't complete the survey, you are not required to give a reason for this. However, if you choose to take part and complete the survey, once your survey responses have been submitted, we will no longer be able to
withdraw your responses – because the survey is anonymous it will not be possible for us to be able to identify which response is yours at that point.
What will happen if I take part?
The study is an online survey made up of one set of questions only. After finishing reading this information sheet you will be asked to complete an online informed consent form. You will then be asked questions about your professional role, followed by questions about your awareness, knowledge and current practice regarding certain aspects of liver disease.
Finally, you will be asked whether you want to enter a prize-draw to win one of five, £75 high-street vouchers in return for your participation. If you wish to do so, you will need to enter your email address (if you would rather not enter the prize-draw/ your email address you can still complete the survey without this, and we would still be pleased to have your responses).
IMPORTANTLY we will not collect any personal identifiable or special category data and none of answers will be linked to your email address (should you chose to provide it) – all answers will be completely anonymous.
How long will the ADIPOSE-2 study take?
The study survey will take less than 10 minutes to complete.
What are the possible benefits of taking part?
Once you complete the survey, you will have the opportunity to opt-in to a draw to receive one of five £75 high-street retail vouchers. Opting into this draw is not a requirement for participation. Five participants will be drawn at random to receive one voucher each.
It is hoped that your involvement will help contribute to the development of liver health research and the care of people with liver disease in the future. You will also have the option to opt-in to information about the results and publication of this research in the future.
What are the possible disadvantages and risks of taking part?
Apart from the short amount of time it takes to fill in the survey, there are not any disadvantages or risks involved in taking part in the study.
Who is organising and funding this research?
This study is being sponsored by the University of Dundee. It is being funded by Scottish Society of Physicians. The study is being organised by Professor John Dillon’s research team.
How will my survey data be used?
We will need to use information from you (from your survey responses) for this research project. Information from the survey will be used to measure clinicians’ awareness, knowledge and current practice regarding liver disease and associated medical conditions.
ADIPOSE-2 will not collect any sensitive or personal identifiable information. If you chose to provide an email address this will not be associated with your other survey responses.
Study Results
The results from the study will be made available through the development of reports, peer-reviewed research papers, and presentations. You will not be identifiable in any of the results or any of the publications.
If you wish to receive details of how the study is progressing and research outputs, there will be an option to opt-in to this at the end of the study.
How will my data be collected?
Data will be collected via an online anonymous survey.
How will my survey response data be stored?
All data will be stored on access-protected University of Dundee servers, accessible only to the research team. Your email address will not be stored with your other responses.
How long will my survey response data be stored for?
Email addresses will be deleted as soon as they are no longer required (after the prize draw is completed and study results disseminated).
The remaining study data will be stored for 5 years after the study is completed.
What measures are in place to protect the security and confidentiality of my data?
The study survey is conducted using the Jisc survey platform. Jisc meets International Organization for Standardization 27001 data standards and data held with the survey platform is processed in compliance with GDPR. Further information can be found about Jisc data security here: https://onlinesurveys.jisc.ac.uk/security/
Storage and usage of all data is governed by University of Dundee data protection policies, which are aligned to the General Data Protection Regulation (GDPR) and associated Standard Operation Procedures (SOP). Further information is available at: https://www.dundee.ac.uk/informationgovernance/data-protection.
Will my data be anonymised?
All data is stored anonymously, and it will not be possible for the research team or anyone else to link individual ADIPOSE-2 participants to their responses.
Who will have access to my data?
The surveys are submitted anonymously, and only the research team will have access to the completed surveys.
Will my data be archived for use in other research projects in the future?
Data collected will only be used in this project.
How will my data be destroyed?
The survey data will be securely destroyed 5 years after the survey results have been published.
Where can you find out more about how your information is used?
You can find out more about how we use your information at
https://www.hra.nhs.uk/information-about-patients/ by asking one of the research team by sending an email to [email protected].
What if I am unhappy or if there is a problem?
If you are unhappy, or if there is a problem, please feel free to let us know by contacting the Primary Investigator, Dr Damien Leith ([email protected]) and we will try to help.
If you are not satisfied, you can make a formal complaint to a senior member of the research team.
If you think you have come to harm due to taking part in the study there are no automatic arrangements to get financial compensation.
If you have a complaint about your participation first of all please talk to the researcher.
If you have any concerns about the way in which your data is processed, it is important that you are aware of your right to lodge a complaint with the Information Commissioner's Office – Scotland by calling 0303 123 1115 or emailing [email protected].
Insurance
The University of Dundee is Sponsoring the study. The University of Dundee holds indemnity cover which covers the University’s legal liability for harm caused to participants.
Who has reviewed this study?
This study has been reviewed by, and received favourable opinion from, the University of Dundee Research Ethics Committee.
All processes outlined in this information sheet are included in the study protocol, which was reviewed by the Research Ethics committee.
Who can I contact if I have further questions?
Principal Investigator
Dr Damien Leith
Ninewells Hospital and Medical School,
Dundee, DD2 1SY
Phone: 01382 383017
Email: [email protected]
Privacy Notice
Information Governance – Data Protection
How we use your information
If you choose to provide personal data in response to any of our questions, you should understand that we will hold and process that information in the dataset we generate from the survey responses.
We will retain the raw data from the survey responses for 5 years from the study end date, at which point it will be deleted. We will retain our anonymous analysis and reporting. You are under no obligation to complete this survey.
Personal and special category data
This survey will not include any identifiable or special category data.
Data controller
Should you provide personal data in response to this survey the University of Dundee would be the data controller for this information. This data may be processed by the University’s nominated agents such as software or service providers. Data will be processed using the University’s business systems. These include Microsoft 365 and Microsoft OneDrive.
The University uses an online survey run by Jisc to collect this information. For information on how this service secures your data please see https://www.jisc.ac.uk/online-surveys.
Lawful processing
If you choose to provide personal data in response to our questions, it will be processed by the University on the basis that it is lawful for it to process your personal data, as the processing is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the University as data controller.
Your rights
If you wish to complain about the University’s use of your information, please contact the University’s Data Protection Officer in the first instance by emailing [email protected]. You may also wish to contact the Information Commissioner’s Office.
| Date made available | 17 Feb 2025 |
|---|---|
| Publisher | University of Dundee |
| Date of data production | 6 Jan 2025 |
Research output
- 1 Other contribution
-
Assessing awareness of fatty liver disease among people in Scotland: a cross-sectional survey study (ADIPOSE)
Byrne, C., Brennan, P., Leith, D., Barrett, R. & Dillon, J., 29 Oct 2024, 24 p. University of Dundee.Research output: Other contribution
Open AccessFile