Projects per year
Personal profile
Biography
Emily has a degree in Biochemistry, a PhD in Bioinformatics and was employed as a post-doctoral researcher in Bioinformatics following her PhD. She then left academia to work in the finance sector. In industry she gained extensive experience of using “Big Data” and leading the delivery of large software and hardware projects. Emily then took a career break to solo cycle from New Zealand to the UK over 1 year.
Emily chose to return to work in an area she feels passionate about. She now works to combine an understanding of medical research and academia with industry standard IT project management and software development experience and apply these skills to the field of Health Informatics and Data Science.
As the academic lead and Director of the Health Informatics Centre (HIC) at the University of Dundee for the past 6 years, Emily has lead a team of ~40 providing services to over 600 different research projects providing expertise in health informatics, data science, data management, governance, and machine learning. She is responsible for an ISO27001 certified infrastructure and a Scottish Government accredited Safe Haven.
As a Professor of Health Data Sceince, Emily is involved with a range of projects in the fields of data science, clinical imaging, data linkage and machine learning.
Research
As Professor in Health Data Science, Emily’s main research interest is in innovative methods for the provision of sensitive linked data which meets both data governance requirements and those of the research community. She is part of Health Data Research (HDR) UK.
For the past 5 years Emily has been leading the development of the Research Data Management Platform (RDMP), an open source tool for the management of longitudinal cohorts of clinical data and computable phenotypes. This tool has now been used to provide over 2000 extracts of anonymised linked data for research (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6041881/).
She is currently leading a £3.8M MRC/EPSRC Programme Grant called PICTURES: https://www.dundee.ac.uk/news/2019/pictures-study-to-create-new-platform-to-help-tackle-major-health-issues.php. The programme is a collaboration between the University of Edinburgh, Abertay University, National Services Scotland and an industry partner and will enable safe and secure research access to linked, routinely collected radiological images stored within the Scottish National Picture Archiving and Communication System (PACS).
Emily is leading the informatics work stream of a Horizon 2020 EU project called ENSAT-HT using machine learning to stratify individuals with different types of hypertension from multi-omics markers (http://www.ensat-ht.eu/). A video about this project can be found here: https://www.youtube.com/watch?v=5VXdFClmxtg.
As part of the work of the Health Data Research (HDR) UK Scottish site, Emily leads a project to roll out a widely used software tool, the Biorepository Management Platform (BMP) developed by Health Informatics Centre (HIC), across all of the Biorepositories within Scotland. Working with the UKRI Tissue Directory Co-ordination Centre (TDCC), we are supporting interoperability and standards.
Through her work as the Director of the Health Informatics Centre (HIC), Emily is involved with a wide range of other projects some of which include the Scottish Improvement Science Collaborating Centre (SISCC) and SHARE.
Education/Academic qualification
Doctor of Science, University of Dundee
1 Oct 2003 → 1 Oct 2006
Bachelor of Science, University of St Andrews
1 Sep 2000 → 1 Jul 2003
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Projects 2013 2024
Integration of Knowledge and Biobank Resources in Comprehensive Translational Approach for Personalized Prevention and Treatment of Metabolic Disorders (INTEGROMED) (joint with Latvian Biomedical Research and Study Centre (Lead), Lund University and Weizmann Institute of Science Ltd)
Brown, A., Brown, A., Jefferson, E., Palmer, C. & Pearson, E.
COMMISSION OF THE EUROPEAN COMMUNITIES
1/10/19 → 30/09/22
Project: Research
Omics-Based Strategies for Improved Diagnosis and Treatment of Endocrine Hypertension (ENSAT-HT) (Joint with Inserm, University of Torino, University of Padua, University of Glasgow, University of Birmingham, Radboud University Medical Centre, SleekIT Limited and Inserm Transfert)
Connell, J., Doney, A., Jefferson, E. & Zhou, K.
COMMISSION OF THE EUROPEAN COMMUNITIES
1/05/15 → 30/04/20
Project: Research
Scottish Improvement Science Research, Development and Knowledge Translation Collaborating Centre (SISCC)
Al Waer, H., Boehnke, J., Breckenridge, J., Burnett, E., Clarkson, J., Croudace, T., Davey, P., Dreischulte, T., Gavine, A., Gray, N., Guthrie, B., Jefferson, E., Lannie, A., Lee, K., Lee, E., MacGillivray, S., Morris, J., Renfrew, M., Sixsmith, J. & Toma, M.
NHS Education for Scotland, The Health Foundation
1/08/14 → 31/07/20
Project: Research
Research Output 2006 2019
Investigating the Relationship Between Type 2 Diabetes and Dementia Using Electronic Medical Records in the GoDARTS Bioresource
Doney, A. S. F., Bonney, W., Jefferson, E., Walesby, K. E., Bittern, R., Trucco, E., Connelly, P., McCrimmon, R. J. & Palmer, C. N. A., Oct 2019, In : Diabetes Care. 42, 10, p. 1973-1980 8 p.Research output: Contribution to journal › Article
The Research Data Management Platform (RDMP): A novel, process driven, open-source tool for the management of longitudinal cohorts of clinical data
Nind, T., Galloway, J., McAllister, G., Scobbie, D., Bonney, W., Hall, C., Tramma, L., Reel, P., Groves, M., Appleby, P., Doney, A., Guthrie, B. & Jefferson, E., 22 May 2018, In : Giga Science. 7, 7, 12 p., giy060.Research output: Contribution to journal › Article
Mapping Local Codes to Read Codes
Bonney, W., Galloway, J., Hall, C., Ghattas, M., Tramma, L., Nind, T., Donnelly, L., Jefferson, E. & Doney, A., 2017, Building Capacity for Health Informatics in the Future. Lau, F., Bartle-Clar, J., Bliss, G., Borycki, E., Courtney, K. & Kuo, A. (eds.). Amsterdam: IOS Press, p. 29-36 8 p. (Studies in Health Technology and Informatics; vol. 234).Research output: Chapter in Book/Report/Conference proceeding › Chapter (peer-reviewed)
The power of using linked routinely collected data for research and issues of security and privacy
Jefferson, E., 2015, Health Informatics for the Curious: Why Study Health Informatics? . Vaidya, K. (ed.). 1 ed. United States: The Curious Academic PublishingResearch output: Chapter in Book/Report/Conference proceeding › Chapter (peer-reviewed)
Profiling clinical datasets for data quality assessment and improvement
Jefferson, E., Bonney, W., Hall, C., Nind, T. & Scobbie, D., 2014, Proceedings of the Health Informatics Scotland 2014 Conference. Bouamrane, M-M. (ed.). BCS, The Chartered Institute for IT, p. 1-8 8 p.Research output: Chapter in Book/Report/Conference proceeding › Conference contribution