Projects per year
Personal profile
Biography
Emily has a degree in Biochemistry, a PhD in Bioinformatics and was employed as a post-doctoral researcher in Bioinformatics following her PhD. She then left academia to work in the finance sector. In industry she gained extensive experience of using “Big Data” and leading the delivery of large software and hardware projects. Emily then took a career break to solo cycle from New Zealand to the UK over 1 year.
Emily chose to return to work in an area she feels passionate about. She now works to combine an understanding of medical research and academia with industry standard IT project management and software development experience and apply these skills to the field of Health Informatics and Data Science.
As the academic lead and Director of the Health Informatics Centre (HIC) at the University of Dundee for the past 6 years, Emily has lead a team of ~60 providing services to hundreds of different research projects providing expertise in health informatics, data science, data management, governance, and machine learning. She is responsible for an ISO27001 certified infrastructure, and a Scottish Government accredited Safe Haven.
As a Professor of Health Data Science, Emily is involved with a range of projects in the fields of data science, clinical imaging, data linkage and machine learning.
Research
As Professor in Health Data Science, Emily’s main research interest is in innovative methods for the provision of sensitive linked data which meets both data governance requirements and those of the research community. She is part of Health Data Research (HDR) UK.
For the past 5 years Emily has been leading the development of the Research Data Management Platform (RDMP), an open source tool for the management of longitudinal cohorts of clinical data and computable phenotypes. This tool has now been used to provide over 2000 extracts of anonymised linked data for research (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6041881/).
She is currently leading a £3.8M MRC/EPSRC Programme Grant called PICTURES: https://www.dundee.ac.uk/news/2019/pictures-study-to-create-new-platform-to-help-tackle-major-health-issues.php. The programme is a collaboration between the University of Edinburgh, Abertay University, National Services Scotland and an industry partner and will enable safe and secure research access to linked, routinely collected radiological images stored within the Scottish National Picture Archiving and Communication System (PACS).
Emily is leading the informatics work stream of a Horizon 2020 EU project called ENSAT-HT using machine learning to stratify individuals with different types of hypertension from multi-omics markers. A video about this project, ENSAT-HT H2020 research project on endocrine hypertension can be found on YouTube.
As part of the work of the Health Data Research (HDR) UK Scottish site, Emily leads a project to roll out a widely used software tool, the Biorepository Management Platform (BMP) developed by Health Informatics Centre (HIC), across all of the Biorepositories within Scotland. Working with the UKRI Tissue Directory Co-ordination Centre (TDCC), we are supporting interoperability and standards.
Through her work as the Director of the Health Informatics Centre (HIC), Emily is involved with a wide range of other projects some of which include the Scottish Improvement Science Collaborating Centre (SISCC) and SHARE.
Expertise related to UN Sustainable Development Goals
In 2015, UN member states agreed to 17 global Sustainable Development Goals (SDGs) to end poverty, protect the planet and ensure prosperity for all. This person’s work contributes towards the following SDG(s):
Education/Academic qualification
Doctor of Science, PhD Bioinformatics
1 Oct 2003 → 1 Oct 2006
Award Date: 1 Jun 2007
Bachelor of Science, Biochemistry, University of St Andrews
1 Sept 2000 → 1 Jul 2003
Award Date: 1 Jul 2003
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Collaborations and top research areas from the last five years
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Alleviate: Hub for Pain (Pain Research Data Hub - UKRI and Versus Arthritis Strategic Priority Fund (SPF) Advanced Pain Discovery Platform) (Joint with University of Oxford, University of Bath, King's College London, Imperial College London and University of Nottingham)
Cole, C., Colvin, L., Hales, T., Jefferson, E., Smith, B. & Walls, R.
1/07/21 → 30/06/24
Project: Research
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Feasibility Study of How to Best Engage Obese Men in Narrative SMS and Incentive Interventions for Weight Loss to Inform a Future Effectiveness and Cost-Effectiveness Trial (Joint with University of Stirling, University of Glasgow, University of Aberdeen, Queen's University Belfast, Glasgow Caledonian University, Men's Health Forum London, Men's Health Forum in Ireland and University of the Highlands and Islands)
Jefferson, E. & Jones, C.
1/10/20 → 31/03/24
Project: Research
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MICA: InterdisciPlInary Collaboration for EfficienT and Effective Use of Clinical Images in Big Data Health Care RESearch: PICTURES (Programme Grant) (Joint with Universities of Edinburgh and Abertay)
Doney, A., Jefferson, E., Palmer, C., Steele, D., Trucco, M. & Wang, H.
1/08/19 → 28/02/25
Project: Research
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Age, sex, and socioeconomic differences in multimorbidity measured in four ways: UK primary care cross-sectional analysis
MacRae, C., Mercer, S. W., Henderson, D., McMinn, M., Morales, D. R., Jefferson, E., Lyons, R. A., Lyons, J., Dibben, C., McAllister, D. A. & Guthrie, B., Apr 2023, In: British Journal of General Practice. 73, 729, p. e249-e256 8 p., 10.3399/BJGP.2022.0405.Research output: Contribution to journal › Article › peer-review
Open AccessFile2 Citations (Scopus)9 Downloads (Pure) -
Disclosure control of machine learning models from trusted research environments (TRE): New challenges and opportunities
Mansouri-Benssassi, E., Rogers, S., Reel, S., Malone, M., Smith, J., Ritchie, F. & Jefferson, E., Apr 2023, In: Heliyon. 9, 4, 11 p., e15143.Research output: Contribution to journal › Review article › peer-review
Open AccessFile16 Downloads (Pure) -
Embedding Patient and Public Involvement in the Alleviate Pain Data Hub
Chuter, A., Beggs, J., Martin, G., Jefferson, E., Colvin, L., Smith, B. H., Milligan, G. & Cole, C., 17 Jul 2023.Research output: Contribution to conference › Poster
Open Access -
Feasibility of artificial intelligence automated detection and classification of heart failure from routine electronic health records
Oo, M. M., Tromp, J., Gao, C., Hummel, Y. M., Guignard-Duff, M., Cole, C., Jefferson, E., Hare, J., de Boer, R. A., Voors, A., Lam, C. S. P. & Lang, C. C., Apr 2023, In: Journal of Cardiac Failure. 29, 4, p. 640 1 p.Research output: Contribution to journal › Meeting abstract › peer-review
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Impact of data source choice on multimorbidity measurement: a comparison study of 2.3 million individuals in the Welsh National Health Service
MacRae, C., Morales, D., Mercer, S. W., Lone, N., Lawson, A., Jefferson, E., McAllister, D., van den Akker, M., Marshall, A., Seth, S., Rawlings, A., Lyons, J., Lyons, R. A., Mizen, A., Abubakar, E., Dibben, C. & Guthrie, B., 15 Aug 2023, In: BMC Medicine. 21, 12 p., 309.Research output: Contribution to journal › Article › peer-review
Open AccessFile6 Downloads (Pure)
Datasets
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Supporting data for "An overview of the National COVID-19 Chest Imaging Database: data quality and cohort analysis"
Cushnan, D. (Creator), Bennett, O. (Creator), Berka, R. (Creator), Bertolli, O. (Creator), Chopra, A. (Creator), Dorgham, S. (Creator), Favaro, A. (Creator), Ganepola, T. (Creator), Halling-Brown, M. D. (Creator), Imreh, G. (Creator), Jacob, J. (Creator), Jefferson, E. (Creator), Lemarchand, F. (Creator), Schofield, D. (Creator) & Wyatt, J. C. (Creator), GigaScience Database, 8 Sept 2021
DOI: 10.5524/100927
Dataset
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NHS Tayside A&E, Diagnosis During A&E visit
Health Informatics Centre, A. C. (Creator), NHS Tayside, A. C. (Creator), Cole, C. (Other), Jefferson, E. (Other) & Johnston, J. (Other), University of Dundee, 27 Sept 2021
DOI: 10.15132/10000222, https://web.www.healthdatagateway.org/dataset/14a39e96-8ac3-4df3-b42b-07718121c585
Dataset
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Demography
Health Informatics Centre, A. C. (Creator), National Records Scotland, A. C. (Creator), Cole, C. (Other), Jefferson, E. (Other) & Johnston, J. (Other), University of Dundee, 31 Jan 2022
DOI: 10.15132/10000221, https://web.www.healthdatagateway.org/dataset/b88c2b24-b75d-4d28-9391-2dbac1605a17
Dataset
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NHS Tayside and Fife Haematology
Health Informatics Centre, A. C. (Creator), NHS Tayside, A. C. (Creator), NHS Fife, A. C. (Creator), Cole, C. (Other), Jefferson, E. (Other) & Johnston, J. (Other), University of Dundee, 24 Sept 2021
DOI: 10.15132/10000218, https://web.www.healthdatagateway.org/dataset/c294bb01-062b-494e-942b-1efe8cbac3dc
Dataset
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SCI Diabetes
Health Informatics Centre, A. C. (Creator), NHS Scotland, A. C. (Creator), Cole, C. (Other), Jefferson, E. (Other) & Johnston, J. (Other), University of Dundee, 19 May 2022
DOI: 10.15132/10000217, https://web.www.healthdatagateway.org/dataset/e179bd5b-0153-46d4-9e1b-4febd3f1153f
Dataset
Prizes
Activities
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Quinquennial Review (QQR) of Health Data Research UK
Emily Jefferson (Speaker)
18 May 2022 → 20 May 2022Activity: Talk or presentation types › Invited talk
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GRAIMatter Public Workshop
Christian Cole (Member), Emily Jefferson (Member), Jim Smith (Member), Simon Rogers (Member) & Maeve Malone (Member)
22 Mar 2022Activity: Other activity types › Public engagement and outreach - public lecture/debate/seminar
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Recommendations for disclosure control of trained Machine Learning (ML) models from Trusted Research Environments (TREs)
Emily Jefferson (Invited speaker)
28 Sept 2022Activity: Talk or presentation types › Invited talk
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Applied Analytics Seminar
Emily Jefferson (Invited speaker)
9 Mar 2022Activity: Talk or presentation types › Keynote
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Alleviate: the Advanced Pain Discovery Platform (APDP) Data Hub
Emily Jefferson (Invited speaker)
28 Jun 2022Activity: Talk or presentation types › Invited talk
Press/Media
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Researchers develop new system to classify endocrine hypertension
Parminder Reel, Smarti Reel & Emily Jefferson
12/10/22
1 item of Media coverage
Press/Media: Research
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Announcing the launch of the HDRUK Phenotype Library
4/11/21
1 item of Media coverage
Press/Media: Research
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Desiderata for the development of next-generation electronic health record phenotype libraries
14/09/21
1 Media contribution
Press/Media: Research
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How will our research help people living with chronic pain?
27/05/21
1 item of Media coverage
Press/Media: Research