A National Network of Safe Havens: A Scottish Perspective

Chuang Gao; Mark McGilchrist; Shahzad Mumtaz; Christopher Hall; Lesley Anderson; John Zurowski; Sharon Gordon; Joanne Lumsden; Vicky Munro; Artur Wozniak; Michael Sibley; Christopher Banks; Chris Duncan; Pamela Linksted; Alastair Hume; Catherine Stables; Charlie Mayor; Jacqueline Caldwell; Katie Wilde; Christian Cole; Emily Jefferson

doi:10.2196/preprints.31684

Emily Jefferson (Lead / Corresponding author)

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Abstract

For over a decade, Scotland has implemented and operationalised a system of Safe Havens providing secure analytics platforms for researchers to access linked, de-identified Electronic Health Records (EHRs) while managing the risk of unauthorised re- identification. In this paper a perspective is provided on the state-of-the-art Scottish Safe Haven Network, including its evolution, to define the key activities required to scale Scottish Safe Haven Network capability to facilitate research and healthcare improvement initiatives. A set of processes related to EHR data and their delivery in Scotland are discussed. An interview with each Safe Haven was conducted to understand their services in detail and the commonalities. The results present how Safe Havens in Scotland have protected privacy while facilitating the reuse of the EHR data. This study provides a common definition of a ‘Safe Haven’ and promotes a consistent understanding among the Scottish Safe Haven Network as well as the clinical and academic research community. We conclude by identifying areas where efficiencies across the network can be made to meet the needs of population-level studies at scale.

Original language	English
Publisher	JMIR Publications Inc.
DOIs	https://doi.org/10.2196/preprints.31684
Publication status	Published - 9 Jul 2021

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10.2196/preprints.31684Licence: CC BY

PreprintSubmitted manuscript, 1.29 MBLicence: CC BY
Author Accepted ManuscriptAccepted author manuscript, 1.36 MB

1 Finished

MICA: InterdisciPlInary Collaboration for EfficienT and Effective Use of Clinical Images in Big Data Health Care RESearch: PICTURES (Programme Grant) (Joint with Universities of Edinburgh and Abertay)
Doney, A. (Investigator), Jefferson, E. (Investigator), Palmer, C. (Investigator), Steele, D. (Investigator), Trucco, M. (Investigator) & Wang, H. (Investigator)
1/08/19 → 28/02/25
Project: Research

1 Article

A National Network of Safe Havens: Scottish Perspective
Gao, C., McGilchrist, M., Mumtaz, S., Hall, C., Anderson, L., Zurowski, J., Gordon, S., Lumsden, J., Munro, V., Wozniak, A., Sibley, M., Banks, C., Duncan, C., Linksted, P., Hume, A., Stables, C., Mayor, C., Caldwell, J., Wilde, K. & Cole, C. & 1 others, Jefferson, E. (Lead / Corresponding author), 9 Mar 2022, In: Journal of Medical Internet Research. 24, 3, 16 p., e31684.
Research output: Contribution to journal › Article › peer-review

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Health Informatics Centre
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Gao, C., McGilchrist, M., Mumtaz, S., Hall, C., Anderson, L., Zurowski, J., Gordon, S., Lumsden, J., Munro, V., Wozniak, A., Sibley, M., Banks, C., Duncan, C., Linksted, P., Hume, A., Stables, C., Mayor, C., Caldwell, J., Wilde, K., ... Jefferson, E. (2021). A National Network of Safe Havens: A Scottish Perspective. JMIR Publications Inc. https://doi.org/10.2196/preprints.31684

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abstract = "For over a decade, Scotland has implemented and operationalised a system of Safe Havens providing secure analytics platforms for researchers to access linked, de-identified Electronic Health Records (EHRs) while managing the risk of unauthorised re- identification. In this paper a perspective is provided on the state-of-the-art Scottish Safe Haven Network, including its evolution, to define the key activities required to scale Scottish Safe Haven Network capability to facilitate research and healthcare improvement initiatives. A set of processes related to EHR data and their delivery in Scotland are discussed. An interview with each Safe Haven was conducted to understand their services in detail and the commonalities. The results present how Safe Havens in Scotland have protected privacy while facilitating the reuse of the EHR data. This study provides a common definition of a {\textquoteleft}Safe Haven{\textquoteright} and promotes a consistent understanding among the Scottish Safe Haven Network as well as the clinical and academic research community. We conclude by identifying areas where efficiencies across the network can be made to meet the needs of population-level studies at scale. ",

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AU - Gao, Chuang

AU - McGilchrist, Mark

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AU - Hall, Christopher

AU - Anderson, Lesley

AU - Zurowski, John

AU - Gordon, Sharon

AU - Lumsden, Joanne

AU - Munro, Vicky

AU - Wozniak, Artur

AU - Sibley, Michael

AU - Banks, Christopher

AU - Duncan, Chris

AU - Linksted, Pamela

AU - Hume, Alastair

AU - Stables, Catherine

AU - Mayor, Charlie

AU - Caldwell, Jacqueline

AU - Wilde, Katie

AU - Cole, Christian

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N2 - For over a decade, Scotland has implemented and operationalised a system of Safe Havens providing secure analytics platforms for researchers to access linked, de-identified Electronic Health Records (EHRs) while managing the risk of unauthorised re- identification. In this paper a perspective is provided on the state-of-the-art Scottish Safe Haven Network, including its evolution, to define the key activities required to scale Scottish Safe Haven Network capability to facilitate research and healthcare improvement initiatives. A set of processes related to EHR data and their delivery in Scotland are discussed. An interview with each Safe Haven was conducted to understand their services in detail and the commonalities. The results present how Safe Havens in Scotland have protected privacy while facilitating the reuse of the EHR data. This study provides a common definition of a ‘Safe Haven’ and promotes a consistent understanding among the Scottish Safe Haven Network as well as the clinical and academic research community. We conclude by identifying areas where efficiencies across the network can be made to meet the needs of population-level studies at scale.

AB - For over a decade, Scotland has implemented and operationalised a system of Safe Havens providing secure analytics platforms for researchers to access linked, de-identified Electronic Health Records (EHRs) while managing the risk of unauthorised re- identification. In this paper a perspective is provided on the state-of-the-art Scottish Safe Haven Network, including its evolution, to define the key activities required to scale Scottish Safe Haven Network capability to facilitate research and healthcare improvement initiatives. A set of processes related to EHR data and their delivery in Scotland are discussed. An interview with each Safe Haven was conducted to understand their services in detail and the commonalities. The results present how Safe Havens in Scotland have protected privacy while facilitating the reuse of the EHR data. This study provides a common definition of a ‘Safe Haven’ and promotes a consistent understanding among the Scottish Safe Haven Network as well as the clinical and academic research community. We conclude by identifying areas where efficiencies across the network can be made to meet the needs of population-level studies at scale.

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A National Network of Safe Havens: A Scottish Perspective

Abstract

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Projects

MICA: InterdisciPlInary Collaboration for EfficienT and Effective Use of Clinical Images in Big Data Health Care RESearch: PICTURES (Programme Grant) (Joint with Universities of Edinburgh and Abertay)

Research output

A National Network of Safe Havens: Scottish Perspective

Equipment

Health Informatics Centre

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