Cleft lip and palate care in the United Kingdom - the clinical standards advisory aroup (CSAG) study. Part 1: background and methodology

Jonathan R. Sandy; Alison C. Williams; David Bearn; Sue Mildinhall; Terrie Murphy; Debbie Sell; John J. Murray; William C. Shaw

doi:10.1597/1545-1569(2001)038<0020:CLAPCI>2.0.CO;2

Cleft lip and palate care in the United Kingdom - the clinical standards advisory aroup (CSAG) study. Part 1: background and methodology

Jonathan R. Sandy, Alison C. Williams, David Bearn, Sue Mildinhall, Terrie Murphy, Debbie Sell, John J. Murray, William C. Shaw

Research output: Contribution to journal › Article › peer-review

63 Citations (Scopus)

Abstract

Objective: To review the history of cleft care in the United Kingdom and the rationale and methodology of a national study. Design: Descriptive overview to introduce this series of papers. Setting: Fifty National Health Service cleft teams. Patients/Participants: Two age cohorts, 5-year-olds and 12-year-olds, with nonsyndromic complete unilateral cleft lip and palate and their parents. Main Outcome Measures: Facial development and appearance, quality of bone grafts, speech, oral health and patient/parent satisfaction. Conclusions: The case for a national assessment of cleft care is made. The methodology of the cross-sectional outcome study is described, together with a survey of training for recently appointed clinicians.

Original language	English
Pages (from-to)	20-23
Number of pages	4
Journal	Cleft Palate-Craniofacial Journal
Volume	38
Issue number	1
DOIs	https://doi.org/10.1597/1545-1569(2001)038<0020:CLAPCI>2.0.CO;2
Publication status	Published - 2001

Keywords

Cleft care
Unilateral cleft lip and palate outcomes
United Kingdom

Access to Document

10.1597/1545-1569(2001)038<0020:CLAPCI>2.0.CO;2

Cite this

@article{db700e909d7d46409934120412f506a3,

title = "Cleft lip and palate care in the United Kingdom - the clinical standards advisory aroup (CSAG) study. Part 1: background and methodology",

abstract = "Objective: To review the history of cleft care in the United Kingdom and the rationale and methodology of a national study. Design: Descriptive overview to introduce this series of papers. Setting: Fifty National Health Service cleft teams. Patients/Participants: Two age cohorts, 5-year-olds and 12-year-olds, with nonsyndromic complete unilateral cleft lip and palate and their parents. Main Outcome Measures: Facial development and appearance, quality of bone grafts, speech, oral health and patient/parent satisfaction. Conclusions: The case for a national assessment of cleft care is made. The methodology of the cross-sectional outcome study is described, together with a survey of training for recently appointed clinicians.",

keywords = "Cleft care, Unilateral cleft lip and palate outcomes, United Kingdom",

author = "Sandy, {Jonathan R.} and Williams, {Alison C.} and David Bearn and Sue Mildinhall and Terrie Murphy and Debbie Sell and Murray, {John J.} and Shaw, {William C.}",

note = "dc.publisher: ACPA The complex speech, audiology, dentofacial, surgical, patient satisfaction and treatment analysis developed for the CSAG UK cleft lip and palate study has become the standard for cleft outcome studies within the UK and internationally, with studies from Europe, Australia and the Indian sub-continent following the study design. ",

year = "2001",

doi = "10.1597/1545-1569(2001)038<0020:CLAPCI>2.0.CO;2",

language = "English",

volume = "38",

pages = "20--23",

journal = "Cleft Palate-Craniofacial Journal",

issn = "1545-1569",

publisher = "SAGE Publications",

number = "1",

}

TY - JOUR

T1 - Cleft lip and palate care in the United Kingdom - the clinical standards advisory aroup (CSAG) study. Part 1: background and methodology

AU - Sandy, Jonathan R.

AU - Williams, Alison C.

AU - Bearn, David

AU - Mildinhall, Sue

AU - Murphy, Terrie

AU - Sell, Debbie

AU - Murray, John J.

AU - Shaw, William C.

N1 - dc.publisher: ACPA The complex speech, audiology, dentofacial, surgical, patient satisfaction and treatment analysis developed for the CSAG UK cleft lip and palate study has become the standard for cleft outcome studies within the UK and internationally, with studies from Europe, Australia and the Indian sub-continent following the study design.

PY - 2001

Y1 - 2001

N2 - Objective: To review the history of cleft care in the United Kingdom and the rationale and methodology of a national study. Design: Descriptive overview to introduce this series of papers. Setting: Fifty National Health Service cleft teams. Patients/Participants: Two age cohorts, 5-year-olds and 12-year-olds, with nonsyndromic complete unilateral cleft lip and palate and their parents. Main Outcome Measures: Facial development and appearance, quality of bone grafts, speech, oral health and patient/parent satisfaction. Conclusions: The case for a national assessment of cleft care is made. The methodology of the cross-sectional outcome study is described, together with a survey of training for recently appointed clinicians.

AB - Objective: To review the history of cleft care in the United Kingdom and the rationale and methodology of a national study. Design: Descriptive overview to introduce this series of papers. Setting: Fifty National Health Service cleft teams. Patients/Participants: Two age cohorts, 5-year-olds and 12-year-olds, with nonsyndromic complete unilateral cleft lip and palate and their parents. Main Outcome Measures: Facial development and appearance, quality of bone grafts, speech, oral health and patient/parent satisfaction. Conclusions: The case for a national assessment of cleft care is made. The methodology of the cross-sectional outcome study is described, together with a survey of training for recently appointed clinicians.

KW - Cleft care

KW - Unilateral cleft lip and palate outcomes

KW - United Kingdom

U2 - 10.1597/1545-1569(2001)038<0020:CLAPCI>2.0.CO;2

DO - 10.1597/1545-1569(2001)038<0020:CLAPCI>2.0.CO;2

M3 - Article

SN - 1545-1569

VL - 38

SP - 20

EP - 23

JO - Cleft Palate-Craniofacial Journal

JF - Cleft Palate-Craniofacial Journal

IS - 1

ER -

Cleft lip and palate care in the United Kingdom - the clinical standards advisory aroup (CSAG) study. Part 1: background and methodology

Abstract

Keywords

Access to Document

Fingerprint

Cite this