Cleft lip and palate care in the United Kingdom - the clinical standards advisory aroup (CSAG) study. Part 1: background and methodology

Jonathan R. Sandy, Alison C. Williams, David Bearn, Sue Mildinhall, Terrie Murphy, Debbie Sell, John J. Murray, William C. Shaw

    Research output: Contribution to journalArticlepeer-review

    51 Citations (Scopus)

    Abstract

    Objective: To review the history of cleft care in the United Kingdom and the rationale and methodology of a national study. Design: Descriptive overview to introduce this series of papers. Setting: Fifty National Health Service cleft teams. Patients/Participants: Two age cohorts, 5-year-olds and 12-year-olds, with nonsyndromic complete unilateral cleft lip and palate and their parents. Main Outcome Measures: Facial development and appearance, quality of bone grafts, speech, oral health and patient/parent satisfaction. Conclusions: The case for a national assessment of cleft care is made. The methodology of the cross-sectional outcome study is described, together with a survey of training for recently appointed clinicians.
    Original languageEnglish
    Pages (from-to)20-23
    Number of pages4
    JournalCleft Palate-Craniofacial Journal
    Volume38
    Issue number1
    DOIs
    Publication statusPublished - 2001

    Keywords

    • Cleft care
    • Unilateral cleft lip and palate outcomes
    • United Kingdom

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