Cleft lip and palate care in the United Kingdom - The clinical Standards Advisory Group (CSAG) study. Part 2: Dentofacial outcomes and patient satisfaction

TY - JOUR

T1 - Cleft lip and palate care in the United Kingdom - The clinical Standards Advisory Group (CSAG) study. Part 2

T2 - Dentofacial outcomes and patient satisfaction

AU - Williams, Alison C.

AU - Bearn, David

AU - Mildinhall, Sue

AU - Murphy, Terrie

AU - Sell, Debbie

AU - Shaw, William C.

AU - Murray, John J.

AU - Sandy, Jonathan R.

PY - 2001/1

Y1 - 2001/1

N2 - Objective: To describe facial development and appearance, quality of bone grafts, oral health, and patient/parent satisfaction, with clinical outcome, for children in two age cohorts born with unilateral cleft lip and palate (UCLP) throughout the United Kingdom. Design: Cross-sectional outcome study. Setting: Fifty National Health Service cleft centers. Participants: Children born with complete UCLP between April 1, 1982, and March 31, 1984, (12-year-olds) and April 1, 1989, and March 31, 1991 (5-year-olds). Data were collected for 239 5-year-olds and 218 12-year-olds. The parents of these children were also interviewed to determine levels of satisfaction with care received. Main Outcome Measures: Skeletal pattern, dental arch relationship, success of alveolar bone grafting, facial appearance, oral health status, and patient/ parent satisfaction. Results: Nearly 40% of 5- and 12-year-olds had poor dental arch relations, and 70% of 12-year-olds had midface retrusion. Fifteen percent of 12-year-olds had not received an alveolar bone graft, and only 58% of bone grafts that had been undertaken were successful. Twenty percent of 12-year-olds and 40% of 5-year-olds had untreated dental caries. Less than one-third of subjects had a good facial appearance as judged by a panel of experts. Levels of patient and parent satisfaction were generally high. Conclusion: A rigorous evaluation of cleft care in the United Kingdom reveals disappointing outcomes.

AB - Objective: To describe facial development and appearance, quality of bone grafts, oral health, and patient/parent satisfaction, with clinical outcome, for children in two age cohorts born with unilateral cleft lip and palate (UCLP) throughout the United Kingdom. Design: Cross-sectional outcome study. Setting: Fifty National Health Service cleft centers. Participants: Children born with complete UCLP between April 1, 1982, and March 31, 1984, (12-year-olds) and April 1, 1989, and March 31, 1991 (5-year-olds). Data were collected for 239 5-year-olds and 218 12-year-olds. The parents of these children were also interviewed to determine levels of satisfaction with care received. Main Outcome Measures: Skeletal pattern, dental arch relationship, success of alveolar bone grafting, facial appearance, oral health status, and patient/ parent satisfaction. Results: Nearly 40% of 5- and 12-year-olds had poor dental arch relations, and 70% of 12-year-olds had midface retrusion. Fifteen percent of 12-year-olds had not received an alveolar bone graft, and only 58% of bone grafts that had been undertaken were successful. Twenty percent of 12-year-olds and 40% of 5-year-olds had untreated dental caries. Less than one-third of subjects had a good facial appearance as judged by a panel of experts. Levels of patient and parent satisfaction were generally high. Conclusion: A rigorous evaluation of cleft care in the United Kingdom reveals disappointing outcomes.

KW - Dentofacial

KW - Oral health

KW - Outcomes

KW - Patient/parent satisfaction

KW - Unilateral cleft lip and palate

UR - https://www.scopus.com/pages/publications/0035031748

U2 - 10.1597/1545-1569_2001_038_0024_clapci_2.0.co_2

DO - 10.1597/1545-1569_2001_038_0024_clapci_2.0.co_2

M3 - Article

C2 - 11204678

AN - SCOPUS:0035031748

SN - 1055-6656

VL - 38

SP - 24

EP - 29

JO - Cleft Palate-Craniofacial Journal

JF - Cleft Palate-Craniofacial Journal

IS - 1

ER -