Community engagement to enhance trust between Gypsy/Travellers, and maternity, early years’ and child dental health services: protocol for a multi-method exploratory study

Alison McFadden (Lead / Corresponding author), Karl Atkin, Kerry Bell, Nicola Innes, Cath Jackson, Helen Jones, Steve MacGillivray, Lindsay Siebelt

Research output: Contribution to journalArticle

2 Citations (Scopus)
155 Downloads (Pure)

Abstract

Background: Gypsy/Travellers have poor health and experience discrimination alongside structural and cultural barriers when accessing health services and consequently may mistrust those services. Our study aims to investigate which approaches to community engagement are most likely to be effective at enhancing trust between Gypsy/Travellers and mainstream health services.

Methods: This multi-method 30-month study, commenced in June 2015, and comprises four stages.
1. Three related reviews: a) systematic review of Gypsy/Travellers’ access to health services; b) systematic review of reviews of how trust has been conceptualised within healthcare; c) realist synthesis of community engagement approaches to enhance trust and increase Gypsy/Travellers’ participation in health services. The reviews will consider any economic literature;
2. Online consultation with health and social care practitioners, and civil society organisations on existing engagement activities, including perceptions of barriers and good practice;
3. Four in-depth case studies of different Gypsy/Traveller communities, focusing on maternity, early years and child dental health services. The case studies include the views of 32–48 mothers of pre-school children, 32–40 healthcare providers and 8–12 informants from third sector organisations.
4. Two stakeholder workshops exploring whether policy options are realistic, sustainable and replicable.

Case study data will be analysed thematically informed by the evaluative framework derived from the realist synthesis in stage one.

The main outputs will be: a) an evaluative framework of Gypsy/Travellers’ engagement with health services; b) recommendations for policy and practice; c) evidence on which to base future implementation strategies including estimation of costs.

Discussion: Our novel multi-method study seeks to provide recommendations for policy and practice that have potential to improve uptake and delivery of health services, and to reduce lifetime health inequalities for Gypsy/Travellers. The findings may have wider resonance for other marginalised populations. Strengths and limitations of the study are discussed.
Original languageEnglish
Article number183
Pages (from-to)1-9
Number of pages9
JournalInternational Journal for Equity in Health
Volume15
DOIs
Publication statusPublished - 14 Nov 2016

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Dental Health Services
Child Health Services
Roma
Health Services
Organizations
Delivery of Health Care
Health
Health Personnel
Referral and Consultation
Economics
Mothers
Education
Costs and Cost Analysis

Keywords

  • Gypsy/Travellers
  • Roma
  • Trust
  • community engagement
  • Maternity services
  • Early years’ services
  • Child dental health services
  • Case study
  • Multi-method research
  • Socially-excluded populations

Cite this

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title = "Community engagement to enhance trust between Gypsy/Travellers, and maternity, early years’ and child dental health services: protocol for a multi-method exploratory study",
abstract = "Background: Gypsy/Travellers have poor health and experience discrimination alongside structural and cultural barriers when accessing health services and consequently may mistrust those services. Our study aims to investigate which approaches to community engagement are most likely to be effective at enhancing trust between Gypsy/Travellers and mainstream health services.Methods: This multi-method 30-month study, commenced in June 2015, and comprises four stages. 1. Three related reviews: a) systematic review of Gypsy/Travellers’ access to health services; b) systematic review of reviews of how trust has been conceptualised within healthcare; c) realist synthesis of community engagement approaches to enhance trust and increase Gypsy/Travellers’ participation in health services. The reviews will consider any economic literature; 2. Online consultation with health and social care practitioners, and civil society organisations on existing engagement activities, including perceptions of barriers and good practice; 3. Four in-depth case studies of different Gypsy/Traveller communities, focusing on maternity, early years and child dental health services. The case studies include the views of 32–48 mothers of pre-school children, 32–40 healthcare providers and 8–12 informants from third sector organisations. 4. Two stakeholder workshops exploring whether policy options are realistic, sustainable and replicable.Case study data will be analysed thematically informed by the evaluative framework derived from the realist synthesis in stage one.The main outputs will be: a) an evaluative framework of Gypsy/Travellers’ engagement with health services; b) recommendations for policy and practice; c) evidence on which to base future implementation strategies including estimation of costs.Discussion: Our novel multi-method study seeks to provide recommendations for policy and practice that have potential to improve uptake and delivery of health services, and to reduce lifetime health inequalities for Gypsy/Travellers. The findings may have wider resonance for other marginalised populations. Strengths and limitations of the study are discussed.",
keywords = "Gypsy/Travellers , Roma, Trust, community engagement, Maternity services, Early years’ services, Child dental health services , Case study, Multi-method research, Socially-excluded populations",
author = "Alison McFadden and Karl Atkin and Kerry Bell and Nicola Innes and Cath Jackson and Helen Jones and Steve MacGillivray and Lindsay Siebelt",
note = "This report is independent research commissioned and funded by the Department of Health Policy Research Programme (Enhancing Gypsy/Travellers’ trust: using maternity and early years’ health services and dental health services as exemplars of mainstream service provision, PR-R8-0314-24002).",
year = "2016",
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T1 - Community engagement to enhance trust between Gypsy/Travellers, and maternity, early years’ and child dental health services

T2 - protocol for a multi-method exploratory study

AU - McFadden, Alison

AU - Atkin, Karl

AU - Bell, Kerry

AU - Innes, Nicola

AU - Jackson, Cath

AU - Jones, Helen

AU - MacGillivray, Steve

AU - Siebelt, Lindsay

N1 - This report is independent research commissioned and funded by the Department of Health Policy Research Programme (Enhancing Gypsy/Travellers’ trust: using maternity and early years’ health services and dental health services as exemplars of mainstream service provision, PR-R8-0314-24002).

PY - 2016/11/14

Y1 - 2016/11/14

N2 - Background: Gypsy/Travellers have poor health and experience discrimination alongside structural and cultural barriers when accessing health services and consequently may mistrust those services. Our study aims to investigate which approaches to community engagement are most likely to be effective at enhancing trust between Gypsy/Travellers and mainstream health services.Methods: This multi-method 30-month study, commenced in June 2015, and comprises four stages. 1. Three related reviews: a) systematic review of Gypsy/Travellers’ access to health services; b) systematic review of reviews of how trust has been conceptualised within healthcare; c) realist synthesis of community engagement approaches to enhance trust and increase Gypsy/Travellers’ participation in health services. The reviews will consider any economic literature; 2. Online consultation with health and social care practitioners, and civil society organisations on existing engagement activities, including perceptions of barriers and good practice; 3. Four in-depth case studies of different Gypsy/Traveller communities, focusing on maternity, early years and child dental health services. The case studies include the views of 32–48 mothers of pre-school children, 32–40 healthcare providers and 8–12 informants from third sector organisations. 4. Two stakeholder workshops exploring whether policy options are realistic, sustainable and replicable.Case study data will be analysed thematically informed by the evaluative framework derived from the realist synthesis in stage one.The main outputs will be: a) an evaluative framework of Gypsy/Travellers’ engagement with health services; b) recommendations for policy and practice; c) evidence on which to base future implementation strategies including estimation of costs.Discussion: Our novel multi-method study seeks to provide recommendations for policy and practice that have potential to improve uptake and delivery of health services, and to reduce lifetime health inequalities for Gypsy/Travellers. The findings may have wider resonance for other marginalised populations. Strengths and limitations of the study are discussed.

AB - Background: Gypsy/Travellers have poor health and experience discrimination alongside structural and cultural barriers when accessing health services and consequently may mistrust those services. Our study aims to investigate which approaches to community engagement are most likely to be effective at enhancing trust between Gypsy/Travellers and mainstream health services.Methods: This multi-method 30-month study, commenced in June 2015, and comprises four stages. 1. Three related reviews: a) systematic review of Gypsy/Travellers’ access to health services; b) systematic review of reviews of how trust has been conceptualised within healthcare; c) realist synthesis of community engagement approaches to enhance trust and increase Gypsy/Travellers’ participation in health services. The reviews will consider any economic literature; 2. Online consultation with health and social care practitioners, and civil society organisations on existing engagement activities, including perceptions of barriers and good practice; 3. Four in-depth case studies of different Gypsy/Traveller communities, focusing on maternity, early years and child dental health services. The case studies include the views of 32–48 mothers of pre-school children, 32–40 healthcare providers and 8–12 informants from third sector organisations. 4. Two stakeholder workshops exploring whether policy options are realistic, sustainable and replicable.Case study data will be analysed thematically informed by the evaluative framework derived from the realist synthesis in stage one.The main outputs will be: a) an evaluative framework of Gypsy/Travellers’ engagement with health services; b) recommendations for policy and practice; c) evidence on which to base future implementation strategies including estimation of costs.Discussion: Our novel multi-method study seeks to provide recommendations for policy and practice that have potential to improve uptake and delivery of health services, and to reduce lifetime health inequalities for Gypsy/Travellers. The findings may have wider resonance for other marginalised populations. Strengths and limitations of the study are discussed.

KW - Gypsy/Travellers

KW - Roma

KW - Trust

KW - community engagement

KW - Maternity services

KW - Early years’ services

KW - Child dental health services

KW - Case study

KW - Multi-method research

KW - Socially-excluded populations

U2 - 10.1186/s12939-016-0475-9

DO - 10.1186/s12939-016-0475-9

M3 - Article

C2 - 27842597

VL - 15

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EP - 9

JO - International Journal for Equity in Health

JF - International Journal for Equity in Health

SN - 1475-9276

M1 - 183

ER -