Deep in the Heart of Your Brain: notes from an exhibition

Deep in the Heart of Your Brain, a companion publication to artist and author Jacqueline Donachie’s 2006 book Tomorrow Belongs to Me, speaks of lived experiences of myotonic dystrophy through interviews, fiction and a commissioned essay. Illustrated with beautiful images from Donachie’s exhibition of the same name at the Gallery of Modern Art, Glasgow, Scotland, in 2016, this publication is centred around a key work from that show, Hazel, a compelling film that directly connects the experiences of the participants – all sister sets, where one sibling has inherited the myotonic dystrophy gene and one has not – to a wider discussion around relationships, age and appearance.

This publication provides an excellent resource for artists, scientists, families living with myotonic dystrophy, and museums to begin to understand the social and emotional complexities around disability, care, relationships and ageing.