Development of the ACTIVE framework to describe stakeholder involvement in systematic reviews

Alex Pollock (Lead / Corresponding author), Pauline Campbell, Caroline Struthers, Anneliese Synnot, Jack Nunn, Sophie Hill, Heather Goodare, Jacqui Morris, Chris W. Watts, Richard Morley

Research output: Contribution to journalArticle

91 Downloads (Pure)

Abstract

Objectives: Involvement of patients, health professionals, and the wider public (‘stakeholders’) is seen to be beneficial to the quality, relevance and impact of research and may enhance the usefulness and uptake of systematic reviews. However, there is a lack of evidence and resources to guide researchers in how to actively involve stakeholders in systematic reviews. In this paper, we report the development of the ACTIVE framework to describe how stakeholders are involved in systematic reviews. Methods: We developed a framework using methods previously described in the development of conceptual frameworks relating to other areas of public involvement, including: literature searching, data extraction, analysis, and categorization. A draft ACTIVE framework was developed and then refined after presentation at a conference workshop, before being applied to a subset of 32 systematic reviews. Data extracted from these systematic reviews, identified in a systematic scoping review, were categorized against pre-defined constructs, including: who was involved, how stakeholders were recruited, the mode of involvement, at what stage there was involvement and the level of control or influence. Results: The final ACTIVE framework described whether patients, carers and/or families, and/or other stakeholders (including health professionals, health decision makers and funders) were involved. We defined: recruitment as either open or closed; the approach to involvement as either one-time, continuous or combined; and the method of involvement as either direct or indirect. The stage of involvement in reviews was defined using the Cochrane Ecosystem stages of a review. The level of control or influence was defined according to the roles and activities of stakeholders in the review process, and described as the ACTIVE continuum of involvement. Conclusions: The ACTIVE framework provides a structure with which to describe key components of stakeholder involvement within a systematic review, and we have used this to summarize how stakeholders have been involved in a subset of varied systematic reviews. The ACTIVE continuum of involvement provides a new model that uses tasks and roles to detail the level of stakeholder involvement. This work has contributed to the development of learning resources aimed at supporting systematic review authors and editors to involve stakeholders in their systematic reviews. The ACTIVE framework may support the decision-making of systematic review authors in planning how to involve stakeholders in future reviews.

Original languageEnglish
Pages (from-to)245-255
Number of pages11
JournalJournal of Health Services Research and Policy
Volume24
Issue number4
Early online date18 Apr 2019
DOIs
Publication statusPublished - Oct 2019

Fingerprint

Health
Caregivers
Ecosystem
Decision Making
Research Personnel
Learning
Education
Research

Keywords

  • evidence synthesis
  • framework
  • stakeholder involvement
  • systematic review

Cite this

Pollock, Alex ; Campbell, Pauline ; Struthers, Caroline ; Synnot, Anneliese ; Nunn, Jack ; Hill, Sophie ; Goodare, Heather ; Morris, Jacqui ; Watts, Chris W. ; Morley, Richard. / Development of the ACTIVE framework to describe stakeholder involvement in systematic reviews. In: Journal of Health Services Research and Policy. 2019 ; Vol. 24, No. 4. pp. 245-255.
@article{3986c40395fe4869843e1067028eded0,
title = "Development of the ACTIVE framework to describe stakeholder involvement in systematic reviews",
abstract = "Objectives: Involvement of patients, health professionals, and the wider public (‘stakeholders’) is seen to be beneficial to the quality, relevance and impact of research and may enhance the usefulness and uptake of systematic reviews. However, there is a lack of evidence and resources to guide researchers in how to actively involve stakeholders in systematic reviews. In this paper, we report the development of the ACTIVE framework to describe how stakeholders are involved in systematic reviews. Methods: We developed a framework using methods previously described in the development of conceptual frameworks relating to other areas of public involvement, including: literature searching, data extraction, analysis, and categorization. A draft ACTIVE framework was developed and then refined after presentation at a conference workshop, before being applied to a subset of 32 systematic reviews. Data extracted from these systematic reviews, identified in a systematic scoping review, were categorized against pre-defined constructs, including: who was involved, how stakeholders were recruited, the mode of involvement, at what stage there was involvement and the level of control or influence. Results: The final ACTIVE framework described whether patients, carers and/or families, and/or other stakeholders (including health professionals, health decision makers and funders) were involved. We defined: recruitment as either open or closed; the approach to involvement as either one-time, continuous or combined; and the method of involvement as either direct or indirect. The stage of involvement in reviews was defined using the Cochrane Ecosystem stages of a review. The level of control or influence was defined according to the roles and activities of stakeholders in the review process, and described as the ACTIVE continuum of involvement. Conclusions: The ACTIVE framework provides a structure with which to describe key components of stakeholder involvement within a systematic review, and we have used this to summarize how stakeholders have been involved in a subset of varied systematic reviews. The ACTIVE continuum of involvement provides a new model that uses tasks and roles to detail the level of stakeholder involvement. This work has contributed to the development of learning resources aimed at supporting systematic review authors and editors to involve stakeholders in their systematic reviews. The ACTIVE framework may support the decision-making of systematic review authors in planning how to involve stakeholders in future reviews.",
keywords = "evidence synthesis, framework, stakeholder involvement, systematic review",
author = "Alex Pollock and Pauline Campbell and Caroline Struthers and Anneliese Synnot and Jack Nunn and Sophie Hill and Heather Goodare and Jacqui Morris and Watts, {Chris W.} and Richard Morley",
note = "The review has been funded by the Learning and Support Department and Consumer Network Co-ordinator, within Cochrane’s Central Executive Team. Findings from the review will be used to develop a learning resource to encourage and enable Cochrane Review Groups to involve consumers in Cochrane systematic reviews. Two members of the funding body (RM & CW) contributed to this project and to the authoring of this manuscript.",
year = "2019",
month = "10",
doi = "10.1177/1355819619841647",
language = "English",
volume = "24",
pages = "245--255",
journal = "Journal of Health Services Research and Policy",
issn = "1355-8196",
publisher = "SAGE Publications",
number = "4",

}

Pollock, A, Campbell, P, Struthers, C, Synnot, A, Nunn, J, Hill, S, Goodare, H, Morris, J, Watts, CW & Morley, R 2019, 'Development of the ACTIVE framework to describe stakeholder involvement in systematic reviews', Journal of Health Services Research and Policy, vol. 24, no. 4, pp. 245-255. https://doi.org/10.1177/1355819619841647

Development of the ACTIVE framework to describe stakeholder involvement in systematic reviews. / Pollock, Alex (Lead / Corresponding author); Campbell, Pauline; Struthers, Caroline; Synnot, Anneliese; Nunn, Jack; Hill, Sophie; Goodare, Heather; Morris, Jacqui; Watts, Chris W.; Morley, Richard.

In: Journal of Health Services Research and Policy, Vol. 24, No. 4, 10.2019, p. 245-255.

Research output: Contribution to journalArticle

TY - JOUR

T1 - Development of the ACTIVE framework to describe stakeholder involvement in systematic reviews

AU - Pollock, Alex

AU - Campbell, Pauline

AU - Struthers, Caroline

AU - Synnot, Anneliese

AU - Nunn, Jack

AU - Hill, Sophie

AU - Goodare, Heather

AU - Morris, Jacqui

AU - Watts, Chris W.

AU - Morley, Richard

N1 - The review has been funded by the Learning and Support Department and Consumer Network Co-ordinator, within Cochrane’s Central Executive Team. Findings from the review will be used to develop a learning resource to encourage and enable Cochrane Review Groups to involve consumers in Cochrane systematic reviews. Two members of the funding body (RM & CW) contributed to this project and to the authoring of this manuscript.

PY - 2019/10

Y1 - 2019/10

N2 - Objectives: Involvement of patients, health professionals, and the wider public (‘stakeholders’) is seen to be beneficial to the quality, relevance and impact of research and may enhance the usefulness and uptake of systematic reviews. However, there is a lack of evidence and resources to guide researchers in how to actively involve stakeholders in systematic reviews. In this paper, we report the development of the ACTIVE framework to describe how stakeholders are involved in systematic reviews. Methods: We developed a framework using methods previously described in the development of conceptual frameworks relating to other areas of public involvement, including: literature searching, data extraction, analysis, and categorization. A draft ACTIVE framework was developed and then refined after presentation at a conference workshop, before being applied to a subset of 32 systematic reviews. Data extracted from these systematic reviews, identified in a systematic scoping review, were categorized against pre-defined constructs, including: who was involved, how stakeholders were recruited, the mode of involvement, at what stage there was involvement and the level of control or influence. Results: The final ACTIVE framework described whether patients, carers and/or families, and/or other stakeholders (including health professionals, health decision makers and funders) were involved. We defined: recruitment as either open or closed; the approach to involvement as either one-time, continuous or combined; and the method of involvement as either direct or indirect. The stage of involvement in reviews was defined using the Cochrane Ecosystem stages of a review. The level of control or influence was defined according to the roles and activities of stakeholders in the review process, and described as the ACTIVE continuum of involvement. Conclusions: The ACTIVE framework provides a structure with which to describe key components of stakeholder involvement within a systematic review, and we have used this to summarize how stakeholders have been involved in a subset of varied systematic reviews. The ACTIVE continuum of involvement provides a new model that uses tasks and roles to detail the level of stakeholder involvement. This work has contributed to the development of learning resources aimed at supporting systematic review authors and editors to involve stakeholders in their systematic reviews. The ACTIVE framework may support the decision-making of systematic review authors in planning how to involve stakeholders in future reviews.

AB - Objectives: Involvement of patients, health professionals, and the wider public (‘stakeholders’) is seen to be beneficial to the quality, relevance and impact of research and may enhance the usefulness and uptake of systematic reviews. However, there is a lack of evidence and resources to guide researchers in how to actively involve stakeholders in systematic reviews. In this paper, we report the development of the ACTIVE framework to describe how stakeholders are involved in systematic reviews. Methods: We developed a framework using methods previously described in the development of conceptual frameworks relating to other areas of public involvement, including: literature searching, data extraction, analysis, and categorization. A draft ACTIVE framework was developed and then refined after presentation at a conference workshop, before being applied to a subset of 32 systematic reviews. Data extracted from these systematic reviews, identified in a systematic scoping review, were categorized against pre-defined constructs, including: who was involved, how stakeholders were recruited, the mode of involvement, at what stage there was involvement and the level of control or influence. Results: The final ACTIVE framework described whether patients, carers and/or families, and/or other stakeholders (including health professionals, health decision makers and funders) were involved. We defined: recruitment as either open or closed; the approach to involvement as either one-time, continuous or combined; and the method of involvement as either direct or indirect. The stage of involvement in reviews was defined using the Cochrane Ecosystem stages of a review. The level of control or influence was defined according to the roles and activities of stakeholders in the review process, and described as the ACTIVE continuum of involvement. Conclusions: The ACTIVE framework provides a structure with which to describe key components of stakeholder involvement within a systematic review, and we have used this to summarize how stakeholders have been involved in a subset of varied systematic reviews. The ACTIVE continuum of involvement provides a new model that uses tasks and roles to detail the level of stakeholder involvement. This work has contributed to the development of learning resources aimed at supporting systematic review authors and editors to involve stakeholders in their systematic reviews. The ACTIVE framework may support the decision-making of systematic review authors in planning how to involve stakeholders in future reviews.

KW - evidence synthesis

KW - framework

KW - stakeholder involvement

KW - systematic review

UR - http://www.scopus.com/inward/record.url?scp=85064624971&partnerID=8YFLogxK

U2 - 10.1177/1355819619841647

DO - 10.1177/1355819619841647

M3 - Article

C2 - 30997859

VL - 24

SP - 245

EP - 255

JO - Journal of Health Services Research and Policy

JF - Journal of Health Services Research and Policy

SN - 1355-8196

IS - 4

ER -