Integrating the voices of seldom-heard communities into development of Trusted Research Environments

Maisie McKenzie; Antony Chuter; Judith Fisher; John Hickson; Paul  Grainge; Gordon Milligan; Christian Cole

doi:10.20933/100001487

Integrating the voices of seldom-heard communities into development of Trusted Research Environments

Maisie McKenzie
, Antony Chuter
, Judith Fisher
, John Hickson
, Paul Grainge
, Gordon Milligan
, Christian Cole

Research output: Contribution to conference › Poster › peer-review

39 Downloads (Pure)

Abstract

Personal data is information which relates to living identifiable individuals and must be treated and managed securely. It may be used for research purposes as long as the security, anonymity and people’s rights are not compromised.

Trusted Research Environments (TREs) allow sensitive personal data from different sources to be:
• combined;
• de-personalised;
• made available for approved researchers to analyse within a secure virtual environment.

The research has to lead to advances which will benefit the lives of the public. Enabling researchers to access a broader range of data more easily while ensuring data security brings great public benefits and trust reassurance. New research can be carried out more quickly, informing policy and scientific advances to improve lives.

Not all sectors of society have had their voices heard equally in the development of TREs.

TREvolution is engaging with people from underserved communities to ensure that their perspectives are heard and their insights shape and inform TREvolution’s work.

Original language	English
Number of pages	1
DOIs	https://doi.org/10.20933/100001487
Publication status	Published - 15 Oct 2025
Event	Health Data Research UK Conference 2025 - Scottish Exhibition Centre, Glasgow, United Kingdom Duration: 15 Oct 2025 → 16 Oct 2025 https://www.hdruk.ac.uk/about/hdr-uk-conference/

Conference

Conference	Health Data Research UK Conference 2025
Country/Territory	United Kingdom
City	Glasgow
Period	15/10/25 → 16/10/25
Other	The UK’s No. 1 conference on health data science took place in October 2025 at the Scottish Event Campus (SEC) in Glasgow. This two-day hybrid event showcased the latest advances in health data science that are improving people’s lives.
Internet address	https://www.hdruk.ac.uk/about/hdr-uk-conference/

Keywords

PPIE
Sensitive data
trusted research environments

Access to Document

10.20933/100001487

Final Published VersionFinal published version, 1.11 MB

DARE Transformational Programme
Cole, C. (Investigator)
1/03/25 → 31/03/27
Project: Research

Health Informatics Centre
Health and Clinical Services
Facility/equipment: Facility

Cite this

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title = "Integrating the voices of seldom-heard communities into development of Trusted Research Environments",

abstract = "Personal data is information which relates to living identifiable individuals and must be treated and managed securely. It may be used for research purposes as long as the security, anonymity and people{\textquoteright}s rights are not compromised. Trusted Research Environments (TREs) allow sensitive personal data from different sources to be: • combined; • de-personalised; • made available for approved researchers to analyse within a secure virtual environment. The research has to lead to advances which will benefit the lives of the public. Enabling researchers to access a broader range of data more easily while ensuring data security brings great public benefits and trust reassurance. New research can be carried out more quickly, informing policy and scientific advances to improve lives. Not all sectors of society have had their voices heard equally in the development of TREs. TREvolution is engaging with people from underserved communities to ensure that their perspectives are heard and their insights shape and inform TREvolution{\textquoteright}s work.",

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T1 - Integrating the voices of seldom-heard communities into development of Trusted Research Environments

AU - McKenzie, Maisie

AU - Chuter, Antony

AU - Fisher, Judith

AU - Hickson, John

AU - Grainge, Paul

AU - Milligan, Gordon

AU - Cole, Christian

PY - 2025/10/15

Y1 - 2025/10/15

N2 - Personal data is information which relates to living identifiable individuals and must be treated and managed securely. It may be used for research purposes as long as the security, anonymity and people’s rights are not compromised. Trusted Research Environments (TREs) allow sensitive personal data from different sources to be: • combined; • de-personalised; • made available for approved researchers to analyse within a secure virtual environment. The research has to lead to advances which will benefit the lives of the public. Enabling researchers to access a broader range of data more easily while ensuring data security brings great public benefits and trust reassurance. New research can be carried out more quickly, informing policy and scientific advances to improve lives. Not all sectors of society have had their voices heard equally in the development of TREs. TREvolution is engaging with people from underserved communities to ensure that their perspectives are heard and their insights shape and inform TREvolution’s work.

AB - Personal data is information which relates to living identifiable individuals and must be treated and managed securely. It may be used for research purposes as long as the security, anonymity and people’s rights are not compromised. Trusted Research Environments (TREs) allow sensitive personal data from different sources to be: • combined; • de-personalised; • made available for approved researchers to analyse within a secure virtual environment. The research has to lead to advances which will benefit the lives of the public. Enabling researchers to access a broader range of data more easily while ensuring data security brings great public benefits and trust reassurance. New research can be carried out more quickly, informing policy and scientific advances to improve lives. Not all sectors of society have had their voices heard equally in the development of TREs. TREvolution is engaging with people from underserved communities to ensure that their perspectives are heard and their insights shape and inform TREvolution’s work.

KW - PPIE

KW - Sensitive data

KW - trusted research environments

U2 - 10.20933/100001487

DO - 10.20933/100001487

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T2 - Health Data Research UK Conference 2025

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ER -

Integrating the voices of seldom-heard communities into development of Trusted Research Environments

Abstract

Conference

Keywords

Access to Document

Fingerprint

Projects

DARE Transformational Programme

Equipment

Health Informatics Centre

Cite this