TY - JOUR
T1 - Life transitions of adolescents and young adults with life-limiting conditions
AU - Johnston , Bridget
AU - Jindal-Snape, Divya
AU - Pringle, Jan
N1 - This review was conducted alongside a study funded by Children's Hospice Association Scotland (CHAS): http://tinyurl.com/kkuohb We would like to thank CHAS for their support. Findings for that study can be found here: Johnston B, Jindal-Snape D, Pringle J et al (2016) Understanding the relationship transitions and associated end of life clinical needs of young adults with life-limiting illnesses: A triangulated longitudinal qualitative study. SAGE Open Medicine, 4, p.2050312116666429.
PY - 2016/12
Y1 - 2016/12
N2 - Aims: A systematic review was conducted to appraise and classify evidence related to the life transitions of adolescents and young adults with life-limiting conditions.Methods: The databases searched were MEDLINE, CINAHL, PsycINFO, CancerLit, and AMED. Methodological quality was assessed using an established tool and the final articles included in the study were rated as moderate to high quality. Articles were then assessed based on the insight that they provided into life transitions for adolescents and young adults.Results: Eighteen studies were included in the final review, with two major life transitions identified as pertinent: ‘illness transition’ and ‘developmental transition’. These concurrent transitions were found to be relevant to adolescents and young adults with life-limiting conditions, generating complex needs. Sub-themes within the transitions were also identified. Furthermore, the illness transition was found to also impact significant others, namely family members, having physical, mental and emotional health implications and requiring them to make adaptations.Conclusions: Future research is needed to focus on adolescent and young adult perspectives to bring further insight into these key transitions, since such perspectives are currently underrepresented. Attention to the impact of the illness on the whole family would be useful to expand findings from this review.
AB - Aims: A systematic review was conducted to appraise and classify evidence related to the life transitions of adolescents and young adults with life-limiting conditions.Methods: The databases searched were MEDLINE, CINAHL, PsycINFO, CancerLit, and AMED. Methodological quality was assessed using an established tool and the final articles included in the study were rated as moderate to high quality. Articles were then assessed based on the insight that they provided into life transitions for adolescents and young adults.Results: Eighteen studies were included in the final review, with two major life transitions identified as pertinent: ‘illness transition’ and ‘developmental transition’. These concurrent transitions were found to be relevant to adolescents and young adults with life-limiting conditions, generating complex needs. Sub-themes within the transitions were also identified. Furthermore, the illness transition was found to also impact significant others, namely family members, having physical, mental and emotional health implications and requiring them to make adaptations.Conclusions: Future research is needed to focus on adolescent and young adult perspectives to bring further insight into these key transitions, since such perspectives are currently underrepresented. Attention to the impact of the illness on the whole family would be useful to expand findings from this review.
KW - Young adult
KW - Life limiting illnesses
KW - Life transitions
KW - Literature review
U2 - 10.12968/ijpn.2016.22.12.608
DO - 10.12968/ijpn.2016.22.12.608
M3 - Article
C2 - 27992275
SN - 1357-6321
VL - 22
SP - 608
EP - 617
JO - International Journal of Palliative Nursing
JF - International Journal of Palliative Nursing
IS - 12
ER -