Lived Experience Co-Production Within the Alleviate Pain Data Hub

Christian Cole; Laura Ward; Judith Fisher; Antony Chuter; Jillian Beggs; Blair H. Smith; Lesley Colvin; Susan Long; Gordon Milligan

doi:10.20933/100001363

Lived Experience Co-Production Within the Alleviate Pain Data Hub

Christian Cole, Laura Ward, Judith Fisher, Antony Chuter, Jillian Beggs, Blair H. Smith, Lesley Colvin, Susan Long, Gordon Milligan

Research output: Contribution to conference › Poster › peer-review

1 Downloads (Pure)

Abstract

Chronic Pain affects up to 28 million people in the UK. The aim of the Alleviate Pain Data Hub is to improve the visibility and accessibility of pain data, leading to improvements in patient quality of life.

The 2024 UK National Pain Survey was run by Alleviate, in collaboration with Pain UK, the Advanced Pain Discovery Platform (APDP) and Chronic Pain Australia. The survey was based on the annual National Pain Survey developed by Chronic Pain Australia and has been further revised for the UK pain community, based on feedback from the UK National Pain Survey 2023.

Original language	English
DOIs	https://doi.org/10.20933/100001363
Publication status	Published - 11 Mar 2025
Event	NHS Research Scotland Patient and Public Involvement Event - University of Stirling, Stirling, United Kingdom Duration: 11 Mar 2025 → 11 Mar 2025 https://www.cso.scot.nhs.uk/ppievent2025/ (Link to Conference News)

Conference

Conference	NHS Research Scotland Patient and Public Involvement Event
Abbreviated title	NRS PPIE 2025
Country/Territory	United Kingdom
City	Stirling
Period	11/03/25 → 11/03/25
Internet address	https://www.cso.scot.nhs.uk/ppievent2025/ (Link to Conference News)

Access to Document

10.20933/100001363

1 Active

Alleviate: Hub for Pain (Pain Research Data Hub - UKRI and Versus Arthritis Strategic Priority Fund (SPF) Advanced Pain Discovery Platform) (Joint with University of Oxford, University of Bath, King's College London, Imperial College London and University of Nottingham)
Cole, C. (Investigator), Colvin, L. (Investigator), Hales, T. (Investigator), Jefferson, E. (Investigator), Smith, B. (Investigator) & Walls, R. (Investigator)
1/07/21 → 31/12/25
Project: Research

1 Conference article

Lived Experience Co-Production Within the Alleviate Pain Data Hub
Milligan, G., Cole, C., Fisher, J., Chuter, A., Beggs, J., Smith, B., Colvin, L. & Long, S., 10 Sept 2024, In: International Journal of Population Data Science. 9, 5, 1 p., 098.
Research output: Contribution to journal › Conference article › peer-review

Open Access
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30 Downloads (Pure)

Health Informatics Centre
Health and Clinical Services
Facility/equipment: Facility

Cite this

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title = "Lived Experience Co-Production Within the Alleviate Pain Data Hub",

abstract = "Chronic Pain affects up to 28 million people in the UK. The aim of the Alleviate Pain Data Hub is to improve the visibility and accessibility of pain data, leading to improvements in patient quality of life. The 2024 UK National Pain Survey was run by Alleviate, in collaboration with Pain UK, the Advanced Pain Discovery Platform (APDP) and Chronic Pain Australia. The survey was based on the annual National Pain Survey developed by Chronic Pain Australia and has been further revised for the UK pain community, based on feedback from the UK National Pain Survey 2023.",

author = "Christian Cole and Laura Ward and Judith Fisher and Antony Chuter and Jillian Beggs and Smith, {Blair H.} and Lesley Colvin and Susan Long and Gordon Milligan",

year = "2025",

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doi = "10.20933/100001363",

language = "English",

note = "NHS Research Scotland Patient and Public Involvement Event, NRS PPIE 2025 ; Conference date: 11-03-2025 Through 11-03-2025",

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TY - CONF

T1 - Lived Experience Co-Production Within the Alleviate Pain Data Hub

AU - Cole, Christian

AU - Ward, Laura

AU - Fisher, Judith

AU - Chuter, Antony

AU - Beggs, Jillian

AU - Smith, Blair H.

AU - Colvin, Lesley

AU - Long, Susan

AU - Milligan, Gordon

PY - 2025/3/11

Y1 - 2025/3/11

N2 - Chronic Pain affects up to 28 million people in the UK. The aim of the Alleviate Pain Data Hub is to improve the visibility and accessibility of pain data, leading to improvements in patient quality of life. The 2024 UK National Pain Survey was run by Alleviate, in collaboration with Pain UK, the Advanced Pain Discovery Platform (APDP) and Chronic Pain Australia. The survey was based on the annual National Pain Survey developed by Chronic Pain Australia and has been further revised for the UK pain community, based on feedback from the UK National Pain Survey 2023.

AB - Chronic Pain affects up to 28 million people in the UK. The aim of the Alleviate Pain Data Hub is to improve the visibility and accessibility of pain data, leading to improvements in patient quality of life. The 2024 UK National Pain Survey was run by Alleviate, in collaboration with Pain UK, the Advanced Pain Discovery Platform (APDP) and Chronic Pain Australia. The survey was based on the annual National Pain Survey developed by Chronic Pain Australia and has been further revised for the UK pain community, based on feedback from the UK National Pain Survey 2023.

U2 - 10.20933/100001363

DO - 10.20933/100001363

M3 - Poster

T2 - NHS Research Scotland Patient and Public Involvement Event

Y2 - 11 March 2025 through 11 March 2025

ER -

Lived Experience Co-Production Within the Alleviate Pain Data Hub

Abstract

Conference

Access to Document

Fingerprint

Projects

Alleviate: Hub for Pain (Pain Research Data Hub - UKRI and Versus Arthritis Strategic Priority Fund (SPF) Advanced Pain Discovery Platform) (Joint with University of Oxford, University of Bath, King's College London, Imperial College London and University of Nottingham)

Research output

Lived Experience Co-Production Within the Alleviate Pain Data Hub

Equipment

Health Informatics Centre

Cite this