Abstract
AIM: This United Kingdom study aimed to explore people's experiences of living with, and self-managing parastomal bulging.
METHODS: Seventeen people were interviewed and 61 people completed an online survey.
RESULTS: Parastomal bulging has a detrimental impact on quality of life including a negative impact on stoma function, daily activities, body image, physical intimacy, and socialising; access to specialist information and support for addressing the problem of bulging was inequitable; support garments were the most common self-management intervention; there was confusion about what exercise would be beneficial or how being active would help in terms of parastomal bulging self-management; peer support is no substitute for high quality specialist support.
CONCLUSION: People need equitable access to information and support to self-manage and treat parastomal bulging. Research about other types of self-management interventions, for example, exercise is required so that people do not have to rely solely on support garments to self-manage parastomal bulging.
Original language | English |
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Article number | 12478 |
Number of pages | 9 |
Journal | Journal of abdominal wall surgery : JAWS |
Volume | 3 |
DOIs | |
Publication status | Published - 28 Mar 2024 |