Lived Experience of Parastomal Bulging: A Mixed Methods Study

Julie Munro (Lead / Corresponding author), Gill Hubbard, Will Goodman, Rebecca Beeken, Raymond Oliphant

Research output: Contribution to journalArticlepeer-review

28 Downloads (Pure)

Abstract

AIM: This United Kingdom study aimed to explore people's experiences of living with, and self-managing parastomal bulging.

METHODS: Seventeen people were interviewed and 61 people completed an online survey.

RESULTS: Parastomal bulging has a detrimental impact on quality of life including a negative impact on stoma function, daily activities, body image, physical intimacy, and socialising; access to specialist information and support for addressing the problem of bulging was inequitable; support garments were the most common self-management intervention; there was confusion about what exercise would be beneficial or how being active would help in terms of parastomal bulging self-management; peer support is no substitute for high quality specialist support.

CONCLUSION: People need equitable access to information and support to self-manage and treat parastomal bulging. Research about other types of self-management interventions, for example, exercise is required so that people do not have to rely solely on support garments to self-manage parastomal bulging.

Original languageEnglish
Article number12478
Number of pages9
JournalJournal of abdominal wall surgery : JAWS
Volume3
DOIs
Publication statusPublished - 28 Mar 2024

Fingerprint

Dive into the research topics of 'Lived Experience of Parastomal Bulging: A Mixed Methods Study'. Together they form a unique fingerprint.

Cite this