Making sense of bereavement in people with profound intellectual and multiple disabilities: carer perspectives

Hannah Young (Lead / Corresponding author), James Hogg, Brenda Garrard

Research output: Contribution to journalArticle

4 Citations (Scopus)
218 Downloads (Pure)

Abstract

Background: People with intellectual disabilities are thought to have a reduced capacity for understanding death. Drawing on cognitive theory, researchers have suggested that those with profound intellectual and multiple disabilities mainly perceive loss as a mismatch between past and present experiences. However, very little research has considered how carers conceptualise bereavement in relation to this group.
Method: Semi-structured interviews obtained responses from 7 carers. Transcripts were examined using Interpretative Phenomenological Analysis. Results: Two super-ordinate themes emerged: ‘difficulty articulating the experience of loss’ and ‘making sense of bereavement through familiar patterns’.
Conclusions: Carers conceptualise bereavement primarily in cognitive terms, but also take account of relational factors mediating loss. Implications for training and further research are outlined.
Original languageEnglish
Pages (from-to)1035-1044
Number of pages10
JournalJournal of Applied Research in Intellectual Disabilities
Volume30
Issue number6
Early online date24 Aug 2016
DOIs
Publication statusPublished - 11 Oct 2017

Keywords

  • profound intellectual and multiple disabilities
  • bereavement
  • carer
  • family
  • grief

Fingerprint Dive into the research topics of 'Making sense of bereavement in people with profound intellectual and multiple disabilities: carer perspectives'. Together they form a unique fingerprint.

  • Cite this