Meeting patient and relatives' information needs upon transfer from an intensive care unit

the development and evaluation of an information booklet

Fiona Paul, Charles Hendry, Louise Cabrelli

    Research output: Contribution to journalArticle

    49 Citations (Scopus)

    Abstract

    Background. Transfer from the intensive care unit to a ward is associated with a significant degree of relocation stress for patients and relatives. This can be stressful for ward nurses due to the dependency levels of patients and the ensuing increased workload. Furthermore the patient may require care, not normally undertaken in that clinical area, e.g. tracheostomy care. Patients may forget the verbal information given to them at the time of transfer and often have limited or no memory of the intensive care unit experience. This can cause anxiety and compound the feelings of stress associated with transfer. Many patients suffer psychological and physiological problems after intensive care unit, which can affect their recovery and quality of life. Aims. The aim of the study was to develop an evidence-based information booklet for patients and relatives preparing for transfer from intensive care units. Design. This collaborative study used an exploratory design with elements of the action research cycle. The study, conducted in three phases, involved identifying patients’ and relatives’ information needs around the time of transfer; designing and developing an information booklet; and the introduction and evaluation of the booklet into practice. Methods. Semistructured interviews were used to elicit the views of patients and relatives regarding their information needs. Members of the multidisciplinary team were involved in identifying and reviewing booklet content. Results. Evaluation identified positive outcomes relating to patients’ and relatives’ satisfaction with the information and enhanced communication with other wards and health care professionals. The study also highlighted the need for more staff education in relation to patients and relatives needs when transferring to a ward. Conclusions. This study has demonstrated the value of providing patients and relatives with written information regarding transfer from intensive care units. Furthermore the study confirmed the feasibility and importance of including patients and relatives in the process of booklet development to ensure that their needs for information are being met. Relevance to clinical practice. Providing written information as part of a structured discharge plan is recommended. It provides patients and relatives with a resource that they can refer to at any time and that enhances verbal communication. The purpose of this information is to inform and empower patients so that they are better prepared for the transfer and recovery period.
    Original languageEnglish
    Pages (from-to)396-405
    Number of pages10
    JournalJournal of Clinical Nursing
    Volume13
    Issue number3
    DOIs
    Publication statusPublished - Mar 2004

    Fingerprint

    Pamphlets
    Intensive Care Units
    Transfer (Psychology)
    Communication
    Tracheostomy
    Health Services Research
    Feasibility Studies
    Workload
    Patient Satisfaction
    Emotions

    Keywords

    • Discharge planning
    • Information development and evaluation
    • Information needs
    • Intensive care
    • Relocation stress
    • Transfer anxiety

    Cite this

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    title = "Meeting patient and relatives' information needs upon transfer from an intensive care unit: the development and evaluation of an information booklet",
    abstract = "Background. Transfer from the intensive care unit to a ward is associated with a significant degree of relocation stress for patients and relatives. This can be stressful for ward nurses due to the dependency levels of patients and the ensuing increased workload. Furthermore the patient may require care, not normally undertaken in that clinical area, e.g. tracheostomy care. Patients may forget the verbal information given to them at the time of transfer and often have limited or no memory of the intensive care unit experience. This can cause anxiety and compound the feelings of stress associated with transfer. Many patients suffer psychological and physiological problems after intensive care unit, which can affect their recovery and quality of life. Aims. The aim of the study was to develop an evidence-based information booklet for patients and relatives preparing for transfer from intensive care units. Design. This collaborative study used an exploratory design with elements of the action research cycle. The study, conducted in three phases, involved identifying patients’ and relatives’ information needs around the time of transfer; designing and developing an information booklet; and the introduction and evaluation of the booklet into practice. Methods. Semistructured interviews were used to elicit the views of patients and relatives regarding their information needs. Members of the multidisciplinary team were involved in identifying and reviewing booklet content. Results. Evaluation identified positive outcomes relating to patients’ and relatives’ satisfaction with the information and enhanced communication with other wards and health care professionals. The study also highlighted the need for more staff education in relation to patients and relatives needs when transferring to a ward. Conclusions. This study has demonstrated the value of providing patients and relatives with written information regarding transfer from intensive care units. Furthermore the study confirmed the feasibility and importance of including patients and relatives in the process of booklet development to ensure that their needs for information are being met. Relevance to clinical practice. Providing written information as part of a structured discharge plan is recommended. It provides patients and relatives with a resource that they can refer to at any time and that enhances verbal communication. The purpose of this information is to inform and empower patients so that they are better prepared for the transfer and recovery period.",
    keywords = "Discharge planning, Information development and evaluation, Information needs, Intensive care, Relocation stress, Transfer anxiety",
    author = "Fiona Paul and Charles Hendry and Louise Cabrelli",
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    Meeting patient and relatives' information needs upon transfer from an intensive care unit : the development and evaluation of an information booklet. / Paul, Fiona; Hendry, Charles; Cabrelli, Louise.

    In: Journal of Clinical Nursing, Vol. 13, No. 3, 03.2004, p. 396-405.

    Research output: Contribution to journalArticle

    TY - JOUR

    T1 - Meeting patient and relatives' information needs upon transfer from an intensive care unit

    T2 - the development and evaluation of an information booklet

    AU - Paul, Fiona

    AU - Hendry, Charles

    AU - Cabrelli, Louise

    N1 - dc.publisher: Wiley-Blackwell Hendry supervised the first author's MPhil on this clinical topic. The study highlights the benefits of including users in strategies to address clinical problems. Research Group 4 - Quality of Life and Quality of Care in Acute and Chronic Illness dc.description.sponsorship: The RCN Research Society (Scotland) and the Nursing and Midwifery Practice Development Unit Scholarship Award

    PY - 2004/3

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    N2 - Background. Transfer from the intensive care unit to a ward is associated with a significant degree of relocation stress for patients and relatives. This can be stressful for ward nurses due to the dependency levels of patients and the ensuing increased workload. Furthermore the patient may require care, not normally undertaken in that clinical area, e.g. tracheostomy care. Patients may forget the verbal information given to them at the time of transfer and often have limited or no memory of the intensive care unit experience. This can cause anxiety and compound the feelings of stress associated with transfer. Many patients suffer psychological and physiological problems after intensive care unit, which can affect their recovery and quality of life. Aims. The aim of the study was to develop an evidence-based information booklet for patients and relatives preparing for transfer from intensive care units. Design. This collaborative study used an exploratory design with elements of the action research cycle. The study, conducted in three phases, involved identifying patients’ and relatives’ information needs around the time of transfer; designing and developing an information booklet; and the introduction and evaluation of the booklet into practice. Methods. Semistructured interviews were used to elicit the views of patients and relatives regarding their information needs. Members of the multidisciplinary team were involved in identifying and reviewing booklet content. Results. Evaluation identified positive outcomes relating to patients’ and relatives’ satisfaction with the information and enhanced communication with other wards and health care professionals. The study also highlighted the need for more staff education in relation to patients and relatives needs when transferring to a ward. Conclusions. This study has demonstrated the value of providing patients and relatives with written information regarding transfer from intensive care units. Furthermore the study confirmed the feasibility and importance of including patients and relatives in the process of booklet development to ensure that their needs for information are being met. Relevance to clinical practice. Providing written information as part of a structured discharge plan is recommended. It provides patients and relatives with a resource that they can refer to at any time and that enhances verbal communication. The purpose of this information is to inform and empower patients so that they are better prepared for the transfer and recovery period.

    AB - Background. Transfer from the intensive care unit to a ward is associated with a significant degree of relocation stress for patients and relatives. This can be stressful for ward nurses due to the dependency levels of patients and the ensuing increased workload. Furthermore the patient may require care, not normally undertaken in that clinical area, e.g. tracheostomy care. Patients may forget the verbal information given to them at the time of transfer and often have limited or no memory of the intensive care unit experience. This can cause anxiety and compound the feelings of stress associated with transfer. Many patients suffer psychological and physiological problems after intensive care unit, which can affect their recovery and quality of life. Aims. The aim of the study was to develop an evidence-based information booklet for patients and relatives preparing for transfer from intensive care units. Design. This collaborative study used an exploratory design with elements of the action research cycle. The study, conducted in three phases, involved identifying patients’ and relatives’ information needs around the time of transfer; designing and developing an information booklet; and the introduction and evaluation of the booklet into practice. Methods. Semistructured interviews were used to elicit the views of patients and relatives regarding their information needs. Members of the multidisciplinary team were involved in identifying and reviewing booklet content. Results. Evaluation identified positive outcomes relating to patients’ and relatives’ satisfaction with the information and enhanced communication with other wards and health care professionals. The study also highlighted the need for more staff education in relation to patients and relatives needs when transferring to a ward. Conclusions. This study has demonstrated the value of providing patients and relatives with written information regarding transfer from intensive care units. Furthermore the study confirmed the feasibility and importance of including patients and relatives in the process of booklet development to ensure that their needs for information are being met. Relevance to clinical practice. Providing written information as part of a structured discharge plan is recommended. It provides patients and relatives with a resource that they can refer to at any time and that enhances verbal communication. The purpose of this information is to inform and empower patients so that they are better prepared for the transfer and recovery period.

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    KW - Information development and evaluation

    KW - Information needs

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    KW - Transfer anxiety

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    JO - Journal of Clinical Nursing

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