My data and me: exploring the views of people who use drugs around administrative data in research

Camila Biazus-Dalcin; Hazel Booth; Sarah Gray; Louise Marryat; Andrea Mohan; Senga Robertson; Sreekanth Thekkumkara

doi:10.20933/100001512

My data and me: exploring the views of people who use drugs around administrative data in research

Health Sciences

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Abstract

This report explored the views of people who use substances on the use of administrative data for research. Researchers from the University of Dundee worked in partnership with Restoration Fife, a drug and alcohol recovery community based in Fife, on this project.

The research involved two focus group discussions with people who use substances. A conference illustrator attended the sessions and created live illustrations of the discussions. Building on the findings from these focus groups, the researchers organised four workshops with a smaller group of participants to co-produce a short stop-motion film. The film was designed to help inform others about how their data are used in research.

The findings showed that participants had limited awareness that their data were being shared or how this process worked. Overall, participants were supportive of the use of administrative data for research. However, for some, this support depended on factors such as the type of data being used, whether consent had been obtained for data sharing, and the purpose of the research.

Original language	English
Publisher	University of Dundee
Number of pages	16
DOIs	https://doi.org/10.20933/100001512
Publication status	Published - 2026

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10.20933/100001512Licence: CC BY

Final Published VersionFinal published version, 4.44 MBLicence: CC BY

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title = "My data and me: exploring the views of people who use drugs around administrative data in research ",

abstract = "This report explored the views of people who use substances on the use of administrative data for research. Researchers from the University of Dundee worked in partnership with Restoration Fife, a drug and alcohol recovery community based in Fife, on this project. The research involved two focus group discussions with people who use substances. A conference illustrator attended the sessions and created live illustrations of the discussions. Building on the findings from these focus groups, the researchers organised four workshops with a smaller group of participants to co-produce a short stop-motion film. The film was designed to help inform others about how their data are used in research. The findings showed that participants had limited awareness that their data were being shared or how this process worked. Overall, participants were supportive of the use of administrative data for research. However, for some, this support depended on factors such as the type of data being used, whether consent had been obtained for data sharing, and the purpose of the research. ",

author = "Camila Biazus-Dalcin and Hazel Booth and Sarah Gray and Louise Marryat and Andrea Mohan and Senga Robertson and Sreekanth Thekkumkara",

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T2 - exploring the views of people who use drugs around administrative data in research

AU - Biazus-Dalcin, Camila

AU - Booth, Hazel

AU - Gray, Sarah

AU - Marryat, Louise

AU - Mohan, Andrea

AU - Robertson, Senga

AU - Thekkumkara, Sreekanth

PY - 2026

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N2 - This report explored the views of people who use substances on the use of administrative data for research. Researchers from the University of Dundee worked in partnership with Restoration Fife, a drug and alcohol recovery community based in Fife, on this project. The research involved two focus group discussions with people who use substances. A conference illustrator attended the sessions and created live illustrations of the discussions. Building on the findings from these focus groups, the researchers organised four workshops with a smaller group of participants to co-produce a short stop-motion film. The film was designed to help inform others about how their data are used in research. The findings showed that participants had limited awareness that their data were being shared or how this process worked. Overall, participants were supportive of the use of administrative data for research. However, for some, this support depended on factors such as the type of data being used, whether consent had been obtained for data sharing, and the purpose of the research.

AB - This report explored the views of people who use substances on the use of administrative data for research. Researchers from the University of Dundee worked in partnership with Restoration Fife, a drug and alcohol recovery community based in Fife, on this project. The research involved two focus group discussions with people who use substances. A conference illustrator attended the sessions and created live illustrations of the discussions. Building on the findings from these focus groups, the researchers organised four workshops with a smaller group of participants to co-produce a short stop-motion film. The film was designed to help inform others about how their data are used in research. The findings showed that participants had limited awareness that their data were being shared or how this process worked. Overall, participants were supportive of the use of administrative data for research. However, for some, this support depended on factors such as the type of data being used, whether consent had been obtained for data sharing, and the purpose of the research.

U2 - 10.20933/100001512

DO - 10.20933/100001512

M3 - Other report

BT - My data and me

PB - University of Dundee

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My data and me: exploring the views of people who use drugs around administrative data in research

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