Patient-reported outcome measures for chronic obstructive pulmonary disease: the exclusion of people with low literacy skills and learning disabilities

Deepa Jahagirdar, Thilo Kroll, Karen Ritchie, Sally Wyke

    Research output: Contribution to journalArticlepeer-review

    9 Citations (Scopus)

    Abstract

    Patient-reported outcome measures (PROMs) are intended to reflect outcomes relevant to patients. They are increasingly used for healthcare quality improvement. To produce valid measures, patients should be involved in the development process but it is unclear whether this usually includes people with low literacy skills or learning disabilities. This potential exclusion raises concerns about whether these groups will be able to use these measures and participate in quality improvement practices.
    Original languageEnglish
    Pages (from-to)11-21
    Number of pages11
    JournalThe Patient: Patient-Centred Outcomes Research
    Volume6
    Issue number1
    DOIs
    Publication statusPublished - Mar 2013

    Keywords

    • Quality Improvement
    • Educational Status
    • Questionnaires
    • Humans
    • Quality of Life
    • Outcome Assessment (Health Care)
    • Learning Disorders
    • Patient Selection
    • Great Britain
    • Comorbidity
    • Pulmonary Disease, Chronic Obstructive

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