Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school: Part 1

Florian Halbeisen; Claire Hogg; Mikkel C. Alanin; Zuzanna Bukowy-Bieryllo; Francisco Dasi; Julie Duncan; Amanda Friend; Myrofora Goutaki; Claire Jackson; Victoria Keenan; Amanda Harris; Robert A. Hirst; Philipp Latzin; Gemma Marsh; Kim Nielsen; Dominic Norris; Daniel Pellicer; Ana Reula; Bruna Rubbo; Nisreen Rumman; Amelia Shoemark; Woolf T. Walker; Claudia E. Kuehni; Jane S. Lucas

doi:10.1186/s12919-018-0098-9

Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school: Part 1

Florian Halbeisen, Claire Hogg, Mikkel C. Alanin, Zuzanna Bukowy-Bieryllo, Francisco Dasi, Julie Duncan, Amanda Friend, Myrofora Goutaki, Claire Jackson, Victoria Keenan, Amanda Harris, Robert A. Hirst, Philipp Latzin, Gemma Marsh, Kim Nielsen, Dominic Norris, Daniel Pellicer, Ana Reula, Bruna Rubbo, Nisreen RummanAmelia Shoemark, Woolf T. Walker, Claudia E. Kuehni, Jane S. Lucas (Lead / Corresponding author)

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Abstract

Primary ciliary dyskinesia (PCD) is a rare heterogenous condition that causes progressive suppurative lung disease, chronic rhinosinusitis, chronic otitis media, infertility and abnormal situs. 'Better Experimental Approaches to Treat Primary Ciliary Dyskinesia' (BEAT-PCD) is a network of scientists and clinicians coordinating research from basic science through to clinical care with the intention of developing treatments and diagnostics that lead to improved long-term outcomes for patients. BEAT-PCD activities are supported by EU funded COST Action (BM1407). The second BEAT-PCD conference, and third PCD training school were held jointly in April 2017 in Valencia, Spain. Presentations and workshops focussed on advancing the knowledge and skills relating to PCD in: basic science, epidemiology, diagnostic testing, clinical management and clinical trials. The multidisciplinary conference provided an interactive platform for exchanging ideas through a program of lectures, poster presentations, breakout sessions and workshops. Three working groups met to plan consensus statements. Progress with BEAT-PCD projects was shared and new collaborations were fostered. In this report, we summarize the meeting, highlighting developments made during the meeting.

Original language	English
Article number	1
Pages (from-to)	1-17
Number of pages	17
Journal	BMC Proceedings
Volume	12
Issue number	Suppl. 2
DOIs	https://doi.org/10.1186/s12919-018-0098-9
Publication status	Published - 5 Mar 2018

ASJC Scopus subject areas

General Biochemistry,Genetics and Molecular Biology

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10.1186/s12919-018-0098-9Licence: CC BY

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© The Author(s). 2018 Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
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Halbeisen, F., Hogg, C., Alanin, M. C., Bukowy-Bieryllo, Z., Dasi, F., Duncan, J., Friend, A., Goutaki, M., Jackson, C., Keenan, V., Harris, A., Hirst, R. A., Latzin, P., Marsh, G., Nielsen, K., Norris, D., Pellicer, D., Reula, A., Rubbo, B., ... Lucas, J. S. (2018). Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school: Part 1. BMC Proceedings, 12(Suppl. 2), 1-17. Article 1. https://doi.org/10.1186/s12919-018-0098-9

@article{8e3d7514804441129f0163b4b407ce7e,

title = "Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school: Part 1",

abstract = "Primary ciliary dyskinesia (PCD) is a rare heterogenous condition that causes progressive suppurative lung disease, chronic rhinosinusitis, chronic otitis media, infertility and abnormal situs. 'Better Experimental Approaches to Treat Primary Ciliary Dyskinesia' (BEAT-PCD) is a network of scientists and clinicians coordinating research from basic science through to clinical care with the intention of developing treatments and diagnostics that lead to improved long-term outcomes for patients. BEAT-PCD activities are supported by EU funded COST Action (BM1407). The second BEAT-PCD conference, and third PCD training school were held jointly in April 2017 in Valencia, Spain. Presentations and workshops focussed on advancing the knowledge and skills relating to PCD in: basic science, epidemiology, diagnostic testing, clinical management and clinical trials. The multidisciplinary conference provided an interactive platform for exchanging ideas through a program of lectures, poster presentations, breakout sessions and workshops. Three working groups met to plan consensus statements. Progress with BEAT-PCD projects was shared and new collaborations were fostered. In this report, we summarize the meeting, highlighting developments made during the meeting.",

author = "Florian Halbeisen and Claire Hogg and Alanin, {Mikkel C.} and Zuzanna Bukowy-Bieryllo and Francisco Dasi and Julie Duncan and Amanda Friend and Myrofora Goutaki and Claire Jackson and Victoria Keenan and Amanda Harris and Hirst, {Robert A.} and Philipp Latzin and Gemma Marsh and Kim Nielsen and Dominic Norris and Daniel Pellicer and Ana Reula and Bruna Rubbo and Nisreen Rumman and Amelia Shoemark and Walker, {Woolf T.} and Kuehni, {Claudia E.} and Lucas, {Jane S.}",

note = "The meeting and this publication was funded by BEAT-PCD (COST Action BM 1407); BEAT-PCD is funded by COST through European Framework Horizon 2020 support. Education grants to further support activities at the meeting were awarded by Circassia and Vertex. JSL has declared that she has received expenses to attend advisory board meetings from Aerocrine, Vertex and Parion. JSL has received research grant funding and honoraria from Circassia. All other authors declare that they have no competing interests.",

year = "2018",

month = mar,

day = "5",

doi = "10.1186/s12919-018-0098-9",

language = "English",

volume = "12",

pages = "1--17",

journal = "BMC Proceedings",

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Halbeisen, F, Hogg, C, Alanin, MC, Bukowy-Bieryllo, Z, Dasi, F, Duncan, J, Friend, A, Goutaki, M, Jackson, C, Keenan, V, Harris, A, Hirst, RA, Latzin, P, Marsh, G, Nielsen, K, Norris, D, Pellicer, D, Reula, A, Rubbo, B, Rumman, N, Shoemark, A, Walker, WT, Kuehni, CE & Lucas, JS 2018, 'Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school: Part 1', BMC Proceedings, vol. 12, no. Suppl. 2, 1, pp. 1-17. https://doi.org/10.1186/s12919-018-0098-9

TY - JOUR

T1 - Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school

T2 - Part 1

AU - Halbeisen, Florian

AU - Hogg, Claire

AU - Alanin, Mikkel C.

AU - Bukowy-Bieryllo, Zuzanna

AU - Dasi, Francisco

AU - Duncan, Julie

AU - Friend, Amanda

AU - Goutaki, Myrofora

AU - Jackson, Claire

AU - Keenan, Victoria

AU - Harris, Amanda

AU - Hirst, Robert A.

AU - Latzin, Philipp

AU - Marsh, Gemma

AU - Nielsen, Kim

AU - Norris, Dominic

AU - Pellicer, Daniel

AU - Reula, Ana

AU - Rubbo, Bruna

AU - Rumman, Nisreen

AU - Shoemark, Amelia

AU - Walker, Woolf T.

AU - Kuehni, Claudia E.

AU - Lucas, Jane S.

N1 - The meeting and this publication was funded by BEAT-PCD (COST Action BM 1407); BEAT-PCD is funded by COST through European Framework Horizon 2020 support. Education grants to further support activities at the meeting were awarded by Circassia and Vertex. JSL has declared that she has received expenses to attend advisory board meetings from Aerocrine, Vertex and Parion. JSL has received research grant funding and honoraria from Circassia. All other authors declare that they have no competing interests.

PY - 2018/3/5

Y1 - 2018/3/5

N2 - Primary ciliary dyskinesia (PCD) is a rare heterogenous condition that causes progressive suppurative lung disease, chronic rhinosinusitis, chronic otitis media, infertility and abnormal situs. 'Better Experimental Approaches to Treat Primary Ciliary Dyskinesia' (BEAT-PCD) is a network of scientists and clinicians coordinating research from basic science through to clinical care with the intention of developing treatments and diagnostics that lead to improved long-term outcomes for patients. BEAT-PCD activities are supported by EU funded COST Action (BM1407). The second BEAT-PCD conference, and third PCD training school were held jointly in April 2017 in Valencia, Spain. Presentations and workshops focussed on advancing the knowledge and skills relating to PCD in: basic science, epidemiology, diagnostic testing, clinical management and clinical trials. The multidisciplinary conference provided an interactive platform for exchanging ideas through a program of lectures, poster presentations, breakout sessions and workshops. Three working groups met to plan consensus statements. Progress with BEAT-PCD projects was shared and new collaborations were fostered. In this report, we summarize the meeting, highlighting developments made during the meeting.

AB - Primary ciliary dyskinesia (PCD) is a rare heterogenous condition that causes progressive suppurative lung disease, chronic rhinosinusitis, chronic otitis media, infertility and abnormal situs. 'Better Experimental Approaches to Treat Primary Ciliary Dyskinesia' (BEAT-PCD) is a network of scientists and clinicians coordinating research from basic science through to clinical care with the intention of developing treatments and diagnostics that lead to improved long-term outcomes for patients. BEAT-PCD activities are supported by EU funded COST Action (BM1407). The second BEAT-PCD conference, and third PCD training school were held jointly in April 2017 in Valencia, Spain. Presentations and workshops focussed on advancing the knowledge and skills relating to PCD in: basic science, epidemiology, diagnostic testing, clinical management and clinical trials. The multidisciplinary conference provided an interactive platform for exchanging ideas through a program of lectures, poster presentations, breakout sessions and workshops. Three working groups met to plan consensus statements. Progress with BEAT-PCD projects was shared and new collaborations were fostered. In this report, we summarize the meeting, highlighting developments made during the meeting.

U2 - 10.1186/s12919-018-0098-9

DO - 10.1186/s12919-018-0098-9

M3 - Article

C2 - 29630684

AN - SCOPUS:85042920184

VL - 12

SP - 1

EP - 17

JO - BMC Proceedings

JF - BMC Proceedings

IS - Suppl. 2

M1 - 1

ER -

Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school: Part 1

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