Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school

Part 1

Florian Halbeisen, Claire Hogg, Mikkel C. Alanin, Zuzanna Bukowy-Bieryllo, Francisco Dasi, Julie Duncan, Amanda Friend, Myrofora Goutaki, Claire Jackson, Victoria Keenan, Amanda Harris, Robert A. Hirst, Philipp Latzin, Gemma Marsh, Kim Nielsen, Dominic Norris, Daniel Pellicer, Ana Reula, Bruna Rubbo, Nisreen Rumman & 4 others Amelia Shoemark, Woolf T. Walker, Claudia E. Kuehni, Jane S. Lucas

Research output: Contribution to journalArticle

2 Citations (Scopus)
80 Downloads (Pure)

Abstract

Primary ciliary dyskinesia (PCD) is a rare heterogenous condition that causes progressive suppurative lung disease, chronic rhinosinusitis, chronic otitis media, infertility and abnormal situs. 'Better Experimental Approaches to Treat Primary Ciliary Dyskinesia' (BEAT-PCD) is a network of scientists and clinicians coordinating research from basic science through to clinical care with the intention of developing treatments and diagnostics that lead to improved long-term outcomes for patients. BEAT-PCD activities are supported by EU funded COST Action (BM1407). The second BEAT-PCD conference, and third PCD training school were held jointly in April 2017 in Valencia, Spain. Presentations and workshops focussed on advancing the knowledge and skills relating to PCD in: basic science, epidemiology, diagnostic testing, clinical management and clinical trials. The multidisciplinary conference provided an interactive platform for exchanging ideas through a program of lectures, poster presentations, breakout sessions and workshops. Three working groups met to plan consensus statements. Progress with BEAT-PCD projects was shared and new collaborations were fostered. In this report, we summarize the meeting, highlighting developments made during the meeting.

Original languageEnglish
Article number1
Pages (from-to)1-17
Number of pages17
JournalBMC Proceedings
Volume12
Issue numberSuppl. 2
DOIs
Publication statusPublished - 5 Mar 2018

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Kartagener Syndrome
Epidemiology
Pulmonary diseases
Testing
Education
Posters
Otitis Media
Spain
Infertility
Lung Diseases
Consensus
Clinical Trials

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Halbeisen, F., Hogg, C., Alanin, M. C., Bukowy-Bieryllo, Z., Dasi, F., Duncan, J., ... Lucas, J. S. (2018). Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school: Part 1. BMC Proceedings, 12(Suppl. 2), 1-17. [1]. https://doi.org/10.1186/s12919-018-0098-9
Halbeisen, Florian ; Hogg, Claire ; Alanin, Mikkel C. ; Bukowy-Bieryllo, Zuzanna ; Dasi, Francisco ; Duncan, Julie ; Friend, Amanda ; Goutaki, Myrofora ; Jackson, Claire ; Keenan, Victoria ; Harris, Amanda ; Hirst, Robert A. ; Latzin, Philipp ; Marsh, Gemma ; Nielsen, Kim ; Norris, Dominic ; Pellicer, Daniel ; Reula, Ana ; Rubbo, Bruna ; Rumman, Nisreen ; Shoemark, Amelia ; Walker, Woolf T. ; Kuehni, Claudia E. ; Lucas, Jane S. / Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school : Part 1. In: BMC Proceedings. 2018 ; Vol. 12, No. Suppl. 2. pp. 1-17.
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abstract = "Primary ciliary dyskinesia (PCD) is a rare heterogenous condition that causes progressive suppurative lung disease, chronic rhinosinusitis, chronic otitis media, infertility and abnormal situs. 'Better Experimental Approaches to Treat Primary Ciliary Dyskinesia' (BEAT-PCD) is a network of scientists and clinicians coordinating research from basic science through to clinical care with the intention of developing treatments and diagnostics that lead to improved long-term outcomes for patients. BEAT-PCD activities are supported by EU funded COST Action (BM1407). The second BEAT-PCD conference, and third PCD training school were held jointly in April 2017 in Valencia, Spain. Presentations and workshops focussed on advancing the knowledge and skills relating to PCD in: basic science, epidemiology, diagnostic testing, clinical management and clinical trials. The multidisciplinary conference provided an interactive platform for exchanging ideas through a program of lectures, poster presentations, breakout sessions and workshops. Three working groups met to plan consensus statements. Progress with BEAT-PCD projects was shared and new collaborations were fostered. In this report, we summarize the meeting, highlighting developments made during the meeting.",
author = "Florian Halbeisen and Claire Hogg and Alanin, {Mikkel C.} and Zuzanna Bukowy-Bieryllo and Francisco Dasi and Julie Duncan and Amanda Friend and Myrofora Goutaki and Claire Jackson and Victoria Keenan and Amanda Harris and Hirst, {Robert A.} and Philipp Latzin and Gemma Marsh and Kim Nielsen and Dominic Norris and Daniel Pellicer and Ana Reula and Bruna Rubbo and Nisreen Rumman and Amelia Shoemark and Walker, {Woolf T.} and Kuehni, {Claudia E.} and Lucas, {Jane S.}",
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Halbeisen, F, Hogg, C, Alanin, MC, Bukowy-Bieryllo, Z, Dasi, F, Duncan, J, Friend, A, Goutaki, M, Jackson, C, Keenan, V, Harris, A, Hirst, RA, Latzin, P, Marsh, G, Nielsen, K, Norris, D, Pellicer, D, Reula, A, Rubbo, B, Rumman, N, Shoemark, A, Walker, WT, Kuehni, CE & Lucas, JS 2018, 'Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school: Part 1', BMC Proceedings, vol. 12, no. Suppl. 2, 1, pp. 1-17. https://doi.org/10.1186/s12919-018-0098-9

Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school : Part 1. / Halbeisen, Florian; Hogg, Claire; Alanin, Mikkel C.; Bukowy-Bieryllo, Zuzanna; Dasi, Francisco; Duncan, Julie; Friend, Amanda; Goutaki, Myrofora; Jackson, Claire; Keenan, Victoria; Harris, Amanda; Hirst, Robert A.; Latzin, Philipp; Marsh, Gemma; Nielsen, Kim; Norris, Dominic; Pellicer, Daniel; Reula, Ana; Rubbo, Bruna; Rumman, Nisreen; Shoemark, Amelia; Walker, Woolf T.; Kuehni, Claudia E.; Lucas, Jane S. (Lead / Corresponding author).

In: BMC Proceedings, Vol. 12, No. Suppl. 2, 1, 05.03.2018, p. 1-17.

Research output: Contribution to journalArticle

TY - JOUR

T1 - Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school

T2 - Part 1

AU - Halbeisen, Florian

AU - Hogg, Claire

AU - Alanin, Mikkel C.

AU - Bukowy-Bieryllo, Zuzanna

AU - Dasi, Francisco

AU - Duncan, Julie

AU - Friend, Amanda

AU - Goutaki, Myrofora

AU - Jackson, Claire

AU - Keenan, Victoria

AU - Harris, Amanda

AU - Hirst, Robert A.

AU - Latzin, Philipp

AU - Marsh, Gemma

AU - Nielsen, Kim

AU - Norris, Dominic

AU - Pellicer, Daniel

AU - Reula, Ana

AU - Rubbo, Bruna

AU - Rumman, Nisreen

AU - Shoemark, Amelia

AU - Walker, Woolf T.

AU - Kuehni, Claudia E.

AU - Lucas, Jane S.

N1 - The meeting and this publication was funded by BEAT-PCD (COST Action BM 1407); BEAT-PCD is funded by COST through European Framework Horizon 2020 support. Education grants to further support activities at the meeting were awarded by Circassia and Vertex. JSL has declared that she has received expenses to attend advisory board meetings from Aerocrine, Vertex and Parion. JSL has received research grant funding and honoraria from Circassia. All other authors declare that they have no competing interests.

PY - 2018/3/5

Y1 - 2018/3/5

N2 - Primary ciliary dyskinesia (PCD) is a rare heterogenous condition that causes progressive suppurative lung disease, chronic rhinosinusitis, chronic otitis media, infertility and abnormal situs. 'Better Experimental Approaches to Treat Primary Ciliary Dyskinesia' (BEAT-PCD) is a network of scientists and clinicians coordinating research from basic science through to clinical care with the intention of developing treatments and diagnostics that lead to improved long-term outcomes for patients. BEAT-PCD activities are supported by EU funded COST Action (BM1407). The second BEAT-PCD conference, and third PCD training school were held jointly in April 2017 in Valencia, Spain. Presentations and workshops focussed on advancing the knowledge and skills relating to PCD in: basic science, epidemiology, diagnostic testing, clinical management and clinical trials. The multidisciplinary conference provided an interactive platform for exchanging ideas through a program of lectures, poster presentations, breakout sessions and workshops. Three working groups met to plan consensus statements. Progress with BEAT-PCD projects was shared and new collaborations were fostered. In this report, we summarize the meeting, highlighting developments made during the meeting.

AB - Primary ciliary dyskinesia (PCD) is a rare heterogenous condition that causes progressive suppurative lung disease, chronic rhinosinusitis, chronic otitis media, infertility and abnormal situs. 'Better Experimental Approaches to Treat Primary Ciliary Dyskinesia' (BEAT-PCD) is a network of scientists and clinicians coordinating research from basic science through to clinical care with the intention of developing treatments and diagnostics that lead to improved long-term outcomes for patients. BEAT-PCD activities are supported by EU funded COST Action (BM1407). The second BEAT-PCD conference, and third PCD training school were held jointly in April 2017 in Valencia, Spain. Presentations and workshops focussed on advancing the knowledge and skills relating to PCD in: basic science, epidemiology, diagnostic testing, clinical management and clinical trials. The multidisciplinary conference provided an interactive platform for exchanging ideas through a program of lectures, poster presentations, breakout sessions and workshops. Three working groups met to plan consensus statements. Progress with BEAT-PCD projects was shared and new collaborations were fostered. In this report, we summarize the meeting, highlighting developments made during the meeting.

U2 - 10.1186/s12919-018-0098-9

DO - 10.1186/s12919-018-0098-9

M3 - Article

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JO - BMC Proceedings

JF - BMC Proceedings

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Halbeisen F, Hogg C, Alanin MC, Bukowy-Bieryllo Z, Dasi F, Duncan J et al. Proceedings of the 2nd BEAT-PCD conference and 3rd PCD training school: Part 1. BMC Proceedings. 2018 Mar 5;12(Suppl. 2):1-17. 1. https://doi.org/10.1186/s12919-018-0098-9