Response shift results of quantitative research using patient-reported outcome measures: a descriptive systematic review

TY - JOUR

T1 - Response shift results of quantitative research using patient-reported outcome measures

T2 - a descriptive systematic review

AU - Sawatzky, Richard

AU - Sajobi, Tolulope T.

AU - Russell, Lara

AU - Awosoga, Oluwagbohunmi A

AU - Ademola, Ayoola

AU - Böhnke, Jan R.

AU - Lawal, Oluwaseyi

AU - Brobbey, Anita

AU - Lix, Lisa M.

AU - Anota, Amelie

AU - Sebille, Véronique

AU - Sprangers, Mirjam A. G.

AU - Verdam, Mathilde G. E.

AU - Response Shift - in Sync Working Group

N1 - Publisher Copyright: © The Author(s) 2023.

PY - 2024/2

Y1 - 2024/2

N2 - Purpose: The objective of this systematic review was to describe the prevalence and magnitude of response shift effects, for different response shift methods, populations, study designs, and patient-reported outcome measures (PROM)s.Methods: A literature search was performed in MEDLINE, PSYCINFO, CINAHL, EMBASE, Social Science Citation Index, and Dissertations & Theses Global to identify longitudinal quantitative studies that examined response shift using PROMs, published before 2021. The magnitude of each response shift effect (effect sizes, R-squared or percentage of respondents with response shift) was ascertained based on reported statistical information or as stated in the manuscript. Prevalence and magnitudes of response shift effects were summarized at two levels of analysis (study and effect levels), for recalibration and reprioritization/reconceptualization separately, and for different response shift methods, and population, study design, and PROM characteristics. Analyses were conducted twice: (a) including all studies and samples, and (b) including only unrelated studies and independent samples.Results: Of the 150 included studies, 130 (86.7%) detected response shift effects. Of the 4868 effects investigated, 793 (16.3%) revealed response shift. Effect sizes could be determined for 105 (70.0%) of the studies for a total of 1130 effects, of which 537 (47.5%) resulted in detection of response shift. Whereas effect sizes varied widely, most median recalibration effect sizes (Cohen's d) were between 0.20 and 0.30 and median reprioritization/reconceptualization effect sizes rarely exceeded 0.15, across the characteristics. Similar results were obtained from unrelated studies.Conclusion: The results draw attention to the need to focus on understanding variability in response shift results: Who experience response shifts, to what extent, and under which circumstances?

AB - Purpose: The objective of this systematic review was to describe the prevalence and magnitude of response shift effects, for different response shift methods, populations, study designs, and patient-reported outcome measures (PROM)s.Methods: A literature search was performed in MEDLINE, PSYCINFO, CINAHL, EMBASE, Social Science Citation Index, and Dissertations & Theses Global to identify longitudinal quantitative studies that examined response shift using PROMs, published before 2021. The magnitude of each response shift effect (effect sizes, R-squared or percentage of respondents with response shift) was ascertained based on reported statistical information or as stated in the manuscript. Prevalence and magnitudes of response shift effects were summarized at two levels of analysis (study and effect levels), for recalibration and reprioritization/reconceptualization separately, and for different response shift methods, and population, study design, and PROM characteristics. Analyses were conducted twice: (a) including all studies and samples, and (b) including only unrelated studies and independent samples.Results: Of the 150 included studies, 130 (86.7%) detected response shift effects. Of the 4868 effects investigated, 793 (16.3%) revealed response shift. Effect sizes could be determined for 105 (70.0%) of the studies for a total of 1130 effects, of which 537 (47.5%) resulted in detection of response shift. Whereas effect sizes varied widely, most median recalibration effect sizes (Cohen's d) were between 0.20 and 0.30 and median reprioritization/reconceptualization effect sizes rarely exceeded 0.15, across the characteristics. Similar results were obtained from unrelated studies.Conclusion: The results draw attention to the need to focus on understanding variability in response shift results: Who experience response shifts, to what extent, and under which circumstances?

KW - Response shift

KW - Patient-reported outcomes

KW - Systematic review

KW - Prevalence

KW - Effect sizes

UR - https://www.scopus.com/pages/publications/85171180801

U2 - 10.1007/s11136-023-03495-x

DO - 10.1007/s11136-023-03495-x

M3 - Review article

C2 - 37702809

SN - 0962-9343

VL - 33

SP - 293

EP - 315

JO - Quality of Life Research

JF - Quality of Life Research

IS - 2

ER -