Screening for psychosocial distress in patients with long-term home parenteral nutrition

A. M. C. Roskott; G. Huisman-de Waal; G. J. Wanten; C. Jonkers-Schuitema; M. J. Serlie; J. P. Baxter; J. E. H. M. Hoekstra-Weebers

doi:10.1016/j.clnu.2012.08.023

Screening for psychosocial distress in patients with long-term home parenteral nutrition

A. M. C. Roskott, G. Huisman-de Waal, G. J. Wanten, C. Jonkers-Schuitema, M. J. Serlie, J. P. Baxter, J. E. H. M. Hoekstra-Weebers

Research output: Contribution to journal › Article › peer-review

18 Citations (Scopus)

Abstract

Background & aims: Long-term home parenteral nutrition (HPN) may cause distress and negatively affect quality of life (QoL). The HPN version of the Distress Thermometer and Problem List (DT/PL) was developed to evaluate distress during HPN. This study validates the DT/PL, examines referral wish for additional care, assesses opinions on the DT/PL, and studies risk factors for distress and referral wish.

Methods: Dutch and Scottish patients completed questions on socio-demographic and HPN-related general characteristics, the DT/PL, referral wish, the Hospital Anxiety and Depression Scale, and opinions on the DT.

Results: The HPN version of the DT/PL seemed valid and the PL sufficiently reliable. Cut-off score appeared to be 6. Consequently, 45% of patients were diagnosed as clinically distressed. Fifty-three percent had a referral wish. Emotional and physical problems were most strongly associated with distress. Not being able to work related to elevated distress. Female gender and co-morbidity related to referral wish. Opinions on the DT were generally positive.

Conclusion: The DT/PL appears to be a good instrument to regularly gain insight into distress and referral wish in HPN patients. Use of the DT/PL facilitates support to patients who most need and want it, thus improving quality of care and QoL. (C) 2012 Elsevier Ltd and European Society for Clinical Nutrition and Metabolism. All rights reserved.

Original language	English
Pages (from-to)	396-403
Number of pages	8
Journal	European Journal of Clinical Nutrition
Volume	32
Issue number	3
DOIs	https://doi.org/10.1016/j.clnu.2012.08.023
Publication status	Published - 2013

Keywords

Intestinal failure associated complications
HOSPITAL ANXIETY
Quality of life instruments
QUALITY-OF-LIFE
IMPACT
Intestinal failure
Distress thermometer
Home parenteral nutrition
DEPRESSION SCALE
Clinical distress
THERMOMETER
Quality of life

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@article{6f66492633ac4873964809fe7e0452f4,

title = "Screening for psychosocial distress in patients with long-term home parenteral nutrition",

abstract = "Background & aims: Long-term home parenteral nutrition (HPN) may cause distress and negatively affect quality of life (QoL). The HPN version of the Distress Thermometer and Problem List (DT/PL) was developed to evaluate distress during HPN. This study validates the DT/PL, examines referral wish for additional care, assesses opinions on the DT/PL, and studies risk factors for distress and referral wish.Methods: Dutch and Scottish patients completed questions on socio-demographic and HPN-related general characteristics, the DT/PL, referral wish, the Hospital Anxiety and Depression Scale, and opinions on the DT.Results: The HPN version of the DT/PL seemed valid and the PL sufficiently reliable. Cut-off score appeared to be 6. Consequently, 45% of patients were diagnosed as clinically distressed. Fifty-three percent had a referral wish. Emotional and physical problems were most strongly associated with distress. Not being able to work related to elevated distress. Female gender and co-morbidity related to referral wish. Opinions on the DT were generally positive.Conclusion: The DT/PL appears to be a good instrument to regularly gain insight into distress and referral wish in HPN patients. Use of the DT/PL facilitates support to patients who most need and want it, thus improving quality of care and QoL. (C) 2012 Elsevier Ltd and European Society for Clinical Nutrition and Metabolism. All rights reserved.",

keywords = "Intestinal failure associated complications, HOSPITAL ANXIETY, Quality of life instruments, QUALITY-OF-LIFE, IMPACT, Intestinal failure, Distress thermometer, Home parenteral nutrition, DEPRESSION SCALE, Clinical distress, THERMOMETER, Quality of life",

author = "Roskott, {A. M. C.} and {Huisman-de Waal}, G. and Wanten, {G. J.} and C. Jonkers-Schuitema and Serlie, {M. J.} and Baxter, {J. P.} and Hoekstra-Weebers, {J. E. H. M.}",

year = "2013",

doi = "10.1016/j.clnu.2012.08.023",

language = "English",

volume = "32",

pages = "396--403",

journal = "European Journal of Clinical Nutrition",

issn = "1476-5640",

publisher = "Nature Publishing Group",

number = "3",

}

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T1 - Screening for psychosocial distress in patients with long-term home parenteral nutrition

AU - Roskott, A. M. C.

AU - Huisman-de Waal, G.

AU - Wanten, G. J.

AU - Jonkers-Schuitema, C.

AU - Serlie, M. J.

AU - Baxter, J. P.

AU - Hoekstra-Weebers, J. E. H. M.

PY - 2013

Y1 - 2013

N2 - Background & aims: Long-term home parenteral nutrition (HPN) may cause distress and negatively affect quality of life (QoL). The HPN version of the Distress Thermometer and Problem List (DT/PL) was developed to evaluate distress during HPN. This study validates the DT/PL, examines referral wish for additional care, assesses opinions on the DT/PL, and studies risk factors for distress and referral wish.Methods: Dutch and Scottish patients completed questions on socio-demographic and HPN-related general characteristics, the DT/PL, referral wish, the Hospital Anxiety and Depression Scale, and opinions on the DT.Results: The HPN version of the DT/PL seemed valid and the PL sufficiently reliable. Cut-off score appeared to be 6. Consequently, 45% of patients were diagnosed as clinically distressed. Fifty-three percent had a referral wish. Emotional and physical problems were most strongly associated with distress. Not being able to work related to elevated distress. Female gender and co-morbidity related to referral wish. Opinions on the DT were generally positive.Conclusion: The DT/PL appears to be a good instrument to regularly gain insight into distress and referral wish in HPN patients. Use of the DT/PL facilitates support to patients who most need and want it, thus improving quality of care and QoL. (C) 2012 Elsevier Ltd and European Society for Clinical Nutrition and Metabolism. All rights reserved.

AB - Background & aims: Long-term home parenteral nutrition (HPN) may cause distress and negatively affect quality of life (QoL). The HPN version of the Distress Thermometer and Problem List (DT/PL) was developed to evaluate distress during HPN. This study validates the DT/PL, examines referral wish for additional care, assesses opinions on the DT/PL, and studies risk factors for distress and referral wish.Methods: Dutch and Scottish patients completed questions on socio-demographic and HPN-related general characteristics, the DT/PL, referral wish, the Hospital Anxiety and Depression Scale, and opinions on the DT.Results: The HPN version of the DT/PL seemed valid and the PL sufficiently reliable. Cut-off score appeared to be 6. Consequently, 45% of patients were diagnosed as clinically distressed. Fifty-three percent had a referral wish. Emotional and physical problems were most strongly associated with distress. Not being able to work related to elevated distress. Female gender and co-morbidity related to referral wish. Opinions on the DT were generally positive.Conclusion: The DT/PL appears to be a good instrument to regularly gain insight into distress and referral wish in HPN patients. Use of the DT/PL facilitates support to patients who most need and want it, thus improving quality of care and QoL. (C) 2012 Elsevier Ltd and European Society for Clinical Nutrition and Metabolism. All rights reserved.

KW - Intestinal failure associated complications

KW - HOSPITAL ANXIETY

KW - Quality of life instruments

KW - QUALITY-OF-LIFE

KW - IMPACT

KW - Intestinal failure

KW - Distress thermometer

KW - Home parenteral nutrition

KW - DEPRESSION SCALE

KW - Clinical distress

KW - THERMOMETER

KW - Quality of life

U2 - 10.1016/j.clnu.2012.08.023

DO - 10.1016/j.clnu.2012.08.023

M3 - Article

C2 - 22981598

SN - 1476-5640

VL - 32

SP - 396

EP - 403

JO - European Journal of Clinical Nutrition

JF - European Journal of Clinical Nutrition

IS - 3

ER -

Screening for psychosocial distress in patients with long-term home parenteral nutrition

Abstract

Keywords

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