The Alleviate Advanced Pain Discovery Platform Data Hub: A national resource for accessing and sharing pain data

Gordon Milligan; Chris Hall; Phil Appleby; Erum Masood; Gillian Martin; Jillian Beggs; Antony Chuter; Tom Giles; Villalon Armando; Phil Quinlan; Christian Cole

doi:10.5281/zenodo.7919383

The Alleviate Advanced Pain Discovery Platform Data Hub: A national resource for accessing and sharing pain data

Gordon Milligan, Chris Hall, Phil Appleby, Erum Masood, Gillian Martin, Jillian Beggs, Antony Chuter, Tom Giles, Villalon Armando, Phil Quinlan, Christian Cole (Lead / Corresponding author)

Research output: Contribution to conference › Poster › peer-review

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Abstract

There are many clinical and non-clinical datasets investigating pain that have been collected by researchers over many years, however, finding and getting access to them is challenging. The data are siloed in hard-to-reach places, in non-standard formats, and it is not possible to assess how relevant they are before getting access. This is a barrier to the pain research community and results in duplication of effort. It does not have to be this way and there are alternative solutions available. Alleviate is an HDR UK Data Hub for the federated querying and secure sharing of UK pain data to researchers, analysts and clinicians at a national and international level. Alleviate is the Data Hub for the Advanced Pain Discovery Platform (APDP), a £24 million research initiative to break through the complexity of pain and reveal potential new treatment approaches to address a wide spectrum of chronic and debilitating clinical conditions.

Original language	English
DOIs	https://doi.org/10.5281/zenodo.7919383
Publication status	Published - 10 May 2023
Event	British Pain Society Annual Scientific Meeting - TIC, Glasgow, United Kingdom Duration: 9 May 2023 → 11 May 2023 https://www.bpsasm.org/

Conference

Conference	British Pain Society Annual Scientific Meeting
Country/Territory	United Kingdom
City	Glasgow
Period	9/05/23 → 11/05/23
Internet address	https://www.bpsasm.org/

Keywords

Pain
Chronic pain
OMOP CDM
Data Federation
Data hub

Access to Document

10.5281/zenodo.7919383Licence: CC BY

Final Published VersionFinal published version, 274 KBLicence: CC BY

Alleviate: Hub for Pain (Pain Research Data Hub - UKRI and Versus Arthritis Strategic Priority Fund (SPF) Advanced Pain Discovery Platform) (Joint with University of Oxford, University of Bath, King's College London, Imperial College London and University of Nottingham)
Cole, C. (Investigator), Colvin, L. (Investigator), Hales, T. (Investigator), Jefferson, E. (Investigator), Smith, B. (Investigator) & Walls, R. (Investigator)
Medical Research Council
1/07/21 → 31/12/24
Project: Research

Health Informatics Centre
Health and Clinical Services
Facility/equipment: Facility

Cite this

Milligan, G., Hall, C., Appleby, P., Masood, E., Martin, G., Beggs, J., Chuter, A., Giles, T., Armando, V., Quinlan, P., & Cole, C. (2023). The Alleviate Advanced Pain Discovery Platform Data Hub: A national resource for accessing and sharing pain data. Poster session presented at British Pain Society Annual Scientific Meeting, Glasgow, United Kingdom. https://doi.org/10.5281/zenodo.7919383

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abstract = "There are many clinical and non-clinical datasets investigating pain that have been collected by researchers over many years, however, finding and getting access to them is challenging. The data are siloed in hard-to-reach places, in non-standard formats, and it is not possible to assess how relevant they are before getting access. This is a barrier to the pain research community and results in duplication of effort. It does not have to be this way and there are alternative solutions available. Alleviate is an HDR UK Data Hub for the federated querying and secure sharing of UK pain data to researchers, analysts and clinicians at a national and international level. Alleviate is the Data Hub for the Advanced Pain Discovery Platform (APDP), a £24 million research initiative to break through the complexity of pain and reveal potential new treatment approaches to address a wide spectrum of chronic and debilitating clinical conditions.",

keywords = "Pain, Chronic pain, OMOP CDM, Data Federation, Data hub",

author = "Gordon Milligan and Chris Hall and Phil Appleby and Erum Masood and Gillian Martin and Jillian Beggs and Antony Chuter and Tom Giles and Villalon Armando and Phil Quinlan and Christian Cole",

year = "2023",

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doi = "10.5281/zenodo.7919383",

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Milligan, G , Hall, C, Appleby, P, Masood, E, Martin, G, Beggs, J, Chuter, A, Giles, T, Armando, V, Quinlan, P & Cole, C 2023, 'The Alleviate Advanced Pain Discovery Platform Data Hub: A national resource for accessing and sharing pain data', British Pain Society Annual Scientific Meeting, Glasgow, United Kingdom, 9/05/23 - 11/05/23. https://doi.org/10.5281/zenodo.7919383

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AU - Milligan, Gordon

AU - Hall, Chris

AU - Appleby, Phil

AU - Masood, Erum

AU - Martin, Gillian

AU - Beggs, Jillian

AU - Chuter, Antony

AU - Giles, Tom

AU - Armando, Villalon

AU - Quinlan, Phil

AU - Cole, Christian

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AB - There are many clinical and non-clinical datasets investigating pain that have been collected by researchers over many years, however, finding and getting access to them is challenging. The data are siloed in hard-to-reach places, in non-standard formats, and it is not possible to assess how relevant they are before getting access. This is a barrier to the pain research community and results in duplication of effort. It does not have to be this way and there are alternative solutions available. Alleviate is an HDR UK Data Hub for the federated querying and secure sharing of UK pain data to researchers, analysts and clinicians at a national and international level. Alleviate is the Data Hub for the Advanced Pain Discovery Platform (APDP), a £24 million research initiative to break through the complexity of pain and reveal potential new treatment approaches to address a wide spectrum of chronic and debilitating clinical conditions.

KW - Pain

KW - Chronic pain

KW - OMOP CDM

KW - Data Federation

KW - Data hub

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DO - 10.5281/zenodo.7919383

M3 - Poster

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ER -

The Alleviate Advanced Pain Discovery Platform Data Hub: A national resource for accessing and sharing pain data

Abstract

Conference

Keywords

Access to Document

Fingerprint

Projects

Alleviate: Hub for Pain (Pain Research Data Hub - UKRI and Versus Arthritis Strategic Priority Fund (SPF) Advanced Pain Discovery Platform) (Joint with University of Oxford, University of Bath, King's College London, Imperial College London and University of Nottingham)

Equipment

Health Informatics Centre

Cite this