The Alleviate Advanced Pain Discovery Platform Data Hub: A national resource for accessing and sharing pain data

Gordon Milligan, Chris Hall, Phil Appleby, Erum Masood, Jillian Beggs, Antony Chuter, Tom Giles, Villalon Armando, Phil Quinlan, Christian Cole

Research output: Contribution to conferencePosterpeer-review

Abstract

There are many clinical and non-clinical datasets investigating pain that have been collected by researchers over many years, however, finding and getting access to them is challenging. The data are siloed in hard-to-reach places, in non-standard formats, and it is not possible to assess how relevant they are before get- ting access. This is a barrier to the pain research community and results in duplication of effort. It does not have to be this way and there are alternative solutions available. The Alleviate Ad- vanced Pain Discovery Platform is an HDR UK Data Hub for the federated querying and secure sharing of UK pain data to re- searchers, analysts and clinicians at a national and internation- al level. People with chronic pain have been involved in design and ongoing management of the platform.
Original languageEnglish
DOIs
Publication statusPublished - 7 Sept 2023
EventNeuPSIG 2023 International Congress on Neuropathic Pain - Lisbon, Portugal
Duration: 7 Sept 20239 Sept 2023
https://neupsig.arinex.one/

Conference

ConferenceNeuPSIG 2023 International Congress on Neuropathic Pain
Country/TerritoryPortugal
CityLisbon
Period7/09/239/09/23
Internet address

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