The impact of ADHD on the health and well-being of ADHD children and their siblings

Tessa Peasgood; Anupam Bhardwaj; Katie Biggs; John E. Brazier; David Coghill; Cindy L. Cooper; David Daley; Cyril de Silva; Val Harpin; Paul Hodgkins; Amulya Nadkarni; Juliana Setyawan; Edmund J S Sonuga-Barke

doi:10.1007/s00787-016-0841-6

The impact of ADHD on the health and well-being of ADHD children and their siblings

Tessa Peasgood, Anupam Bhardwaj, Katie Biggs (Lead / Corresponding author), John E. Brazier, David Coghill, Cindy L. Cooper, David Daley, Cyril de Silva, Val Harpin, Paul Hodgkins, Amulya Nadkarni, Juliana Setyawan, Edmund J S Sonuga-Barke

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Abstract

Childhood attention-deficit/hyperactivity disorder (ADHD) has been associated with reduced health and well-being of patients and their families. The authors undertook a large UK survey-based observational study of the burden associated with childhood ADHD. The impact of ADHD on both the patient (N = 476) and their siblings (N = 337) on health-related quality of life (HRQoL) and happiness was quantified using multiple standard measures [e.g. child health utility-9D (CHU-9D), EuroQol-5D-Youth]. In the analysis, careful statistical adjustments were made to ensure a like-for-like comparison of ADHD families with two different control groups. We controlled for carers’ ADHD symptoms, their employment and relationship status and siblings’ ADHD symptoms. ADHD was associated with a significant deficit in the patient’s HRQoL (with a CHU-9D score of around 6 % lower). Children with ADHD also have less sleep and were less happy with their family and their lives overall. No consistent decrement to the HRQoL of the siblings was identified across the models, except that related to their own conduct problems. The siblings do, however, report lower happiness with life overall and with their family, even when controlling for the siblings own ADHD symptoms. We also find evidence of elevated bullying between siblings in families with a child with ADHD. Overall, the current results suggest that the reduction in quality of life caused by ADHD is experienced both by the child with ADHD and their siblings.

Original language	English
Pages (from-to)	1217-1231
Number of pages	15
Journal	European Child & Adolescent Psychiatry
Volume	25
Issue number	11
Early online date	1 Apr 2016
DOIs	https://doi.org/10.1007/s00787-016-0841-6
Publication status	Published - Nov 2016

Keywords

ADHD
Burden
Children
CHU-9D
EQ-5D-Y
Health-related quality of life
Impact of ADHD on family outcomes
Life satisfaction
Siblings
Sleep
Utility
Well-being

ASJC Scopus subject areas

Psychiatry and Mental health
Pediatrics, Perinatology, and Child Health
Philosophy
Developmental and Educational Psychology

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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10.1007/s00787-016-0841-6Licence: CC BY

Final Published Version
© The Author(s) 2016. Open Access. This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The final publication is available at Springer via http://dx.doi.org/10.1007/s00787-016-0841-6.
Final published version, 482 KBLicence: CC BY

Cite this

Peasgood, T., Bhardwaj, A., Biggs, K., Brazier, J. E., Coghill, D., Cooper, C. L., Daley, D., de Silva, C., Harpin, V., Hodgkins, P., Nadkarni, A., Setyawan, J., & Sonuga-Barke, E. J. S. (2016). The impact of ADHD on the health and well-being of ADHD children and their siblings. European Child & Adolescent Psychiatry, 25(11), 1217-1231. https://doi.org/10.1007/s00787-016-0841-6

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abstract = "Childhood attention-deficit/hyperactivity disorder (ADHD) has been associated with reduced health and well-being of patients and their families. The authors undertook a large UK survey-based observational study of the burden associated with childhood ADHD. The impact of ADHD on both the patient (N = 476) and their siblings (N = 337) on health-related quality of life (HRQoL) and happiness was quantified using multiple standard measures [e.g. child health utility-9D (CHU-9D), EuroQol-5D-Youth]. In the analysis, careful statistical adjustments were made to ensure a like-for-like comparison of ADHD families with two different control groups. We controlled for carers{\textquoteright} ADHD symptoms, their employment and relationship status and siblings{\textquoteright} ADHD symptoms. ADHD was associated with a significant deficit in the patient{\textquoteright}s HRQoL (with a CHU-9D score of around 6 % lower). Children with ADHD also have less sleep and were less happy with their family and their lives overall. No consistent decrement to the HRQoL of the siblings was identified across the models, except that related to their own conduct problems. The siblings do, however, report lower happiness with life overall and with their family, even when controlling for the siblings own ADHD symptoms. We also find evidence of elevated bullying between siblings in families with a child with ADHD. Overall, the current results suggest that the reduction in quality of life caused by ADHD is experienced both by the child with ADHD and their siblings.",

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Peasgood, T, Bhardwaj, A, Biggs, K, Brazier, JE, Coghill, D, Cooper, CL, Daley, D, de Silva, C, Harpin, V, Hodgkins, P, Nadkarni, A, Setyawan, J & Sonuga-Barke, EJS 2016, 'The impact of ADHD on the health and well-being of ADHD children and their siblings', European Child & Adolescent Psychiatry, vol. 25, no. 11, pp. 1217-1231. https://doi.org/10.1007/s00787-016-0841-6

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AU - Hodgkins, Paul

AU - Nadkarni, Amulya

AU - Setyawan, Juliana

AU - Sonuga-Barke, Edmund J S

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The impact of ADHD on the health and well-being of ADHD children and their siblings

Abstract

Keywords

ASJC Scopus subject areas

UN SDGs

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