The impact of ADHD on the health and well-being of ADHD children and their siblings

Tessa Peasgood, Anupam Bhardwaj, Katie Biggs (Lead / Corresponding author), John E. Brazier, David Coghill, Cindy L. Cooper, David Daley, Cyril de Silva, Val Harpin, Paul Hodgkins, Amulya Nadkarni, Juliana Setyawan, Edmund J S Sonuga-Barke

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    Abstract

    Childhood attention-deficit/hyperactivity disorder (ADHD) has been associated with reduced health and well-being of patients and their families. The authors undertook a large UK survey-based observational study of the burden associated with childhood ADHD. The impact of ADHD on both the patient (N = 476) and their siblings (N = 337) on health-related quality of life (HRQoL) and happiness was quantified using multiple standard measures [e.g. child health utility-9D (CHU-9D), EuroQol-5D-Youth]. In the analysis, careful statistical adjustments were made to ensure a like-for-like comparison of ADHD families with two different control groups. We controlled for carers’ ADHD symptoms, their employment and relationship status and siblings’ ADHD symptoms. ADHD was associated with a significant deficit in the patient’s HRQoL (with a CHU-9D score of around 6 % lower). Children with ADHD also have less sleep and were less happy with their family and their lives overall. No consistent decrement to the HRQoL of the siblings was identified across the models, except that related to their own conduct problems. The siblings do, however, report lower happiness with life overall and with their family, even when controlling for the siblings own ADHD symptoms. We also find evidence of elevated bullying between siblings in families with a child with ADHD. Overall, the current results suggest that the reduction in quality of life caused by ADHD is experienced both by the child with ADHD and their siblings.

    Original languageEnglish
    Pages (from-to)1217-1231
    Number of pages15
    JournalEuropean Child & Adolescent Psychiatry
    Volume25
    Issue number11
    Early online date1 Apr 2016
    DOIs
    Publication statusPublished - Nov 2016

    Keywords

    • ADHD
    • Burden
    • Children
    • CHU-9D
    • EQ-5D-Y
    • Health-related quality of life
    • Impact of ADHD on family outcomes
    • Life satisfaction
    • Siblings
    • Sleep
    • Utility
    • Well-being

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  • Cite this

    Peasgood, T., Bhardwaj, A., Biggs, K., Brazier, J. E., Coghill, D., Cooper, C. L., Daley, D., de Silva, C., Harpin, V., Hodgkins, P., Nadkarni, A., Setyawan, J., & Sonuga-Barke, E. J. S. (2016). The impact of ADHD on the health and well-being of ADHD children and their siblings. European Child & Adolescent Psychiatry, 25(11), 1217-1231. https://doi.org/10.1007/s00787-016-0841-6