The prevalence of faecal incontinence in myotonic dystrophy type 1

R. K. H. Petty; M. P. Eugenicos; M. J. Hamilton; M. E. Farrugia; Y. Robb; R. Ballantyne; H. Gregory; C. McWilliam; C. Longman

doi:10.1016/j.nmd.2019.05.009

The prevalence of faecal incontinence in myotonic dystrophy type 1

R. K. H. Petty (Lead / Corresponding author), M. P. Eugenicos, M. J. Hamilton, M. E. Farrugia, Y. Robb, R. Ballantyne, H. Gregory, C. McWilliam, C. Longman

Research output: Contribution to journal › Article › peer-review

1 Citation (Scopus)

Abstract

Faecal incontinence is recognised as a feature of myotonic dystrophy along with other symptoms of bowel dysfunction, but its prevalence is poorly defined. We have surveyed 152 unselected myotonic dystrophy patients. We identified issues with bowel control in 104 (68% of the study population). Forty-eight (32%) reported faecal incontinence in the 4 weeks prior to completion of the questionnaire. Fifty-six patients (37%) reported having to change their lifestyle because of incontinence issues at some point in the prior 4 weeks. This study shows a high frequency of life-changing symptoms in a large unselected, cohort of patients with myotonic dystrophy type 1, and highlights lower gastrointestinal symptoms as an important issue for further research.

Original language	English
Pages (from-to)	562-566
Number of pages	5
Journal	Neuromuscular Disorders
Volume	29
Issue number	7
Early online date	7 Jun 2019
DOIs	https://doi.org/10.1016/j.nmd.2019.05.009
Publication status	Published - Jul 2019

Keywords

Bowel dysfunction
Faecal incontinence
Myotonic dystrophy type 1

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title = "The prevalence of faecal incontinence in myotonic dystrophy type 1",

abstract = "Faecal incontinence is recognised as a feature of myotonic dystrophy along with other symptoms of bowel dysfunction, but its prevalence is poorly defined. We have surveyed 152 unselected myotonic dystrophy patients. We identified issues with bowel control in 104 (68% of the study population). Forty-eight (32%) reported faecal incontinence in the 4 weeks prior to completion of the questionnaire. Fifty-six patients (37%) reported having to change their lifestyle because of incontinence issues at some point in the prior 4 weeks. This study shows a high frequency of life-changing symptoms in a large unselected, cohort of patients with myotonic dystrophy type 1, and highlights lower gastrointestinal symptoms as an important issue for further research.",

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AU - Petty, R. K. H.

AU - Eugenicos, M. P.

AU - Hamilton, M. J.

AU - Farrugia, M. E.

AU - Robb, Y.

AU - Ballantyne, R.

AU - Gregory, H.

AU - McWilliam, C.

AU - Longman, C.

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