Abstract
Faecal incontinence is recognised as a feature of myotonic dystrophy along with other symptoms of bowel dysfunction, but its prevalence is poorly defined. We have surveyed 152 unselected myotonic dystrophy patients. We identified issues with bowel control in 104 (68% of the study population). Forty-eight (32%) reported faecal incontinence in the 4 weeks prior to completion of the questionnaire. Fifty-six patients (37%) reported having to change their lifestyle because of incontinence issues at some point in the prior 4 weeks. This study shows a high frequency of life-changing symptoms in a large unselected, cohort of patients with myotonic dystrophy type 1, and highlights lower gastrointestinal symptoms as an important issue for further research.
| Original language | English |
|---|---|
| Pages (from-to) | 562-566 |
| Number of pages | 5 |
| Journal | Neuromuscular Disorders |
| Volume | 29 |
| Issue number | 7 |
| Early online date | 7 Jun 2019 |
| DOIs | |
| Publication status | Published - Jul 2019 |
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Keywords
- Bowel dysfunction
- Faecal incontinence
- Myotonic dystrophy type 1
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}
The prevalence of faecal incontinence in myotonic dystrophy type 1. / Petty, R. K. H. (Lead / Corresponding author); Eugenicos, M. P.; Hamilton, M. J.; Farrugia, M. E.; Robb, Y.; Ballantyne, R.; Gregory, H.; McWilliam, C.; Longman, C.
In: Neuromuscular Disorders , Vol. 29, No. 7, 07.2019, p. 562-566.Research output: Contribution to journal › Article
TY - JOUR
T1 - The prevalence of faecal incontinence in myotonic dystrophy type 1
AU - Petty, R. K. H.
AU - Eugenicos, M. P.
AU - Hamilton, M. J.
AU - Farrugia, M. E.
AU - Robb, Y.
AU - Ballantyne, R.
AU - Gregory, H.
AU - McWilliam, C.
AU - Longman, C.
PY - 2019/7
Y1 - 2019/7
N2 - Faecal incontinence is recognised as a feature of myotonic dystrophy along with other symptoms of bowel dysfunction, but its prevalence is poorly defined. We have surveyed 152 unselected myotonic dystrophy patients. We identified issues with bowel control in 104 (68% of the study population). Forty-eight (32%) reported faecal incontinence in the 4 weeks prior to completion of the questionnaire. Fifty-six patients (37%) reported having to change their lifestyle because of incontinence issues at some point in the prior 4 weeks. This study shows a high frequency of life-changing symptoms in a large unselected, cohort of patients with myotonic dystrophy type 1, and highlights lower gastrointestinal symptoms as an important issue for further research.
AB - Faecal incontinence is recognised as a feature of myotonic dystrophy along with other symptoms of bowel dysfunction, but its prevalence is poorly defined. We have surveyed 152 unselected myotonic dystrophy patients. We identified issues with bowel control in 104 (68% of the study population). Forty-eight (32%) reported faecal incontinence in the 4 weeks prior to completion of the questionnaire. Fifty-six patients (37%) reported having to change their lifestyle because of incontinence issues at some point in the prior 4 weeks. This study shows a high frequency of life-changing symptoms in a large unselected, cohort of patients with myotonic dystrophy type 1, and highlights lower gastrointestinal symptoms as an important issue for further research.
KW - Bowel dysfunction
KW - Faecal incontinence
KW - Myotonic dystrophy type 1
UR - http://www.scopus.com/inward/record.url?scp=85068077364&partnerID=8YFLogxK
U2 - 10.1016/j.nmd.2019.05.009
DO - 10.1016/j.nmd.2019.05.009
M3 - Article
C2 - 31266721
AN - SCOPUS:85068077364
VL - 29
SP - 562
EP - 566
JO - Neuromuscular Disorders
JF - Neuromuscular Disorders
SN - 0960-8966
IS - 7
ER -