Therapeutic patient education in atopic dermatitis: worldwide experiences

Jean-Francois Stalder, Claire Bernier, Alan Ball, Linda De Raeve, Uwe Gieler, Mette Deleuran, Danielle Marcoux, Lawrence F. Eichenfield, Peter Lio, Sue Lewis-Jones, Carlo Gelmetti, Roberto Takaoka, Christine Chiaverini, Laurent Misery, Sebastien Barbarot, Oriented Patient-Educ Network

    Research output: Contribution to journalArticlepeer-review

    56 Citations (Scopus)

    Abstract

    Therapeutic patient education (TPE) has proven effective in increasing treatment adherence and improving quality of life (QoL) for patients with numerous chronic diseases, especially atopic dermatitis (AD). This study was undertaken to identify worldwide TPE experiences in AD treatment. Experts from 23 hospitals, located in 11 countries, responded to a questionnaire on 10 major items. Patients in TPE programs were mainly children and adolescents with moderate to severe AD or markedly affected QoL. Individual and collective approaches were used. Depending on the center, the number of sessions varied from one to six (corresponding to 2 to 12hours of education), and 20 to 200 patients were followed each year. Each center's education team comprised multidisciplinary professionals (e.g., doctors, nurses, psychologists). Evaluations were based on clinical assessment, QoL, a satisfaction index, or some combination of the three. When funding was obtained, it came from regional health authorities (France), insurance companies (Germany), donations (United States), or pharmaceutical firms (Japan, Italy). The role of patient associations was always highlighted, but their involvement in the TPE process varied from one country to another. Despite the nonexhaustive approach, our findings demonstrate the increasing interest in TPE for managing individuals with AD. In spite of the cultural and financial differences between countries, there is a consensus among experts to integrate education into the treatment of eczema.

    Original languageEnglish
    Pages (from-to)329-334
    Number of pages6
    JournalPediatric Dermatology
    Volume30
    Issue number3
    DOIs
    Publication statusPublished - 2013

    Keywords

    • MANAGEMENT
    • PROGRAMS
    • CHILDREN
    • ECZEMA
    • ORIENTED SCORAD

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