Time is now to consider how we evaluate person-centred care—the role of patient-reported outcomes

Claudia Rutherford; Jan Boehnke; Joanne Greenhalgh; Vaibhav Tyagi; Tanya McCance; Brendan McCormack

doi:10.3389/frhs.2025.1578037

Time is now to consider how we evaluate person-centred care—the role of patient-reported outcomes

Claudia Rutherford (Lead / Corresponding author)
, Jan Boehnke
, Joanne Greenhalgh
, Vaibhav Tyagi
, Tanya McCance
, Brendan McCormack

Health Sciences

Research output: Contribution to journal › Article › peer-review

5 Citations (Scopus)

54 Downloads (Pure)

Abstract

Person-centred care refers to health care that is respectful of and responsive to personal experiences, preferences, needs, goals and values of service users. Despite the growing recognition of the value of patient-reported outcome measures, they are rarely used as evaluation endpoints in person-centred care research and care practices. This paper contributes to knowledge by examining the opportunities and challenges of using patient-reported outcome measures to measure person-centred care. Our focus is not the collection and feedback of patient-reported outcomes to enact person-centred care. We discuss differences between patient- and person-reported outcomes and their role in assessing person-centred care. We also challenge some existing measurement practices and usage of existing patient-reported outcome measures. We critically discuss some potential consequences of current practices, and present possible solutions. We do not have all the answers, and we urge those working in the field of patient-reported measurement to collectively come together to find solutions. With this perspective article, we aim to start the conversation to think differently about how we evaluate person-centred care and propose areas of enquiry that incorporate patient-reported outcomes into the evaluation of person-centred care.

Original language	English
Article number	1578037
Number of pages	9
Journal	Frontiers in Health Services
Volume	5
DOIs	https://doi.org/10.3389/frhs.2025.1578037
Publication status	Published - 13 Jun 2025

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

SDG 3 Good Health and Well-being

Keywords

person-centred care (PCC)
patient-reported outcomes
evaluation
measurement framework
research

ASJC Scopus subject areas

Health Professions(all)
Medicine (miscellaneous)
Health(social science)
Nursing(all)

Access to Document

10.3389/frhs.2025.1578037Licence: CC BY

Final Published VersionFinal published version, 561 KBLicence: CC BY

5 Citations
3 Article

The LEADING guideline: Reporting standards for expert panel, best-estimate diagnosis, and longitudinal expert all data (LEAD) methods
Eijsbroek, V. C. (Lead / Corresponding author), Kjell, K., Schwartz, H. A., Boehnke, J. R., Fried, E. I., Klein, D. N., Gustafsson, P., Augenstein, I., Bossuyt, P. M. M. & Kjell, O. N. E., Aug 2025, In: Comprehensive Psychiatry. 141, 12 p., 152603.
Research output: Contribution to journal › Article › peer-review

Open Access
File
3 Link opens in a new tab Citations (Scopus)

34 Downloads (Pure)
A core outcome set for trials evaluating self-management interventions in people with severe mental illness and coexisting type 2 diabetes
Carswell, C. (Lead / Corresponding author), Taylor, J., Holt, R. I. G., Brown, J. V. E., Ajjan, R., Böhnke, J. R., Doran, T., Kellar, I., Shiers, D., Wright, J. & Siddiqi, N., Apr 2024, In: Diabetic Medicine. 41, 4, 10 p., e15288.
Research output: Contribution to journal › Article › peer-review

Open Access
File
150 Downloads (Pure)
Core outcome sets for trials of interventions to prevent and to treat multimorbidity in adults in low and middle-income countries: the COSMOS study
COSMOS collaboration, Vidyasagaran, A. L. (Lead / Corresponding author), Ayesha, R., Boehnke, J. R., Kirkham, J., Rose, L., Hurst, J. R., Miranda, J. J., Rana, R. Z., Vedanthan, R., Faisal, M. R., Afaq, S., Agarwal, G., Aguilar-Salinas, C. A., Akinroye, K., Akinyemi, R. O., Ali, S. R., Aman, R., Anza-Ramirez, C. & Appuhamy, K. K. & 41 others, Baldew, S.-S., Barbui, C., Batista, S. R. R., Caamaño, M. D. C., Chowdhury, A. H., de Siqueira-Filha, N. T., Del Castillo Fernández, D., Downey, L., Flores-Flores, O., García, O. P., García-Ulloa, A. C., Holt, R. I., Huque, R., Kabukye, J. K., Kanan, S., Khalid, H., Koly, K. N., Kwashie, J. S., Levitt, N. S., Lopez-Jaramillo, P., Mohan, S., Muliyala, K. P., Naz, Q., Odili, A. N., Oyeyemi, A. L., Pacheco-Barrios, N. V., Praveen, D., Purgato, M., Ronquillo, D., Siddiqi, K., Singh, R., Tran, P. B., Tufail, P., Uphoff, E. P., van Olmen, J., Verhey, R., Wright, J. M., Zafra-Tanaka, J. H., Zavala, G. A., Zhao, Y. W. & Siddiqi, N., 19 Aug 2024, In: BMJ Global Health. 9, 8, 13 p., e015120.
Research output: Contribution to journal › Article › peer-review

Open Access
File
9 Link opens in a new tab Citations (Scopus)

138 Downloads (Pure)

1 Invited talk

Quality assurance, quantitative, and qualitative evaluation methods for psychotherapeutic interventions including assessment instruments (annually)
Boehnke, J. (Speaker)
May 2026
Activity: Talk or presentation types › Invited talk

Cite this

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title = "Time is now to consider how we evaluate person-centred care{\textemdash}the role of patient-reported outcomes",

abstract = "Person-centred care refers to health care that is respectful of and responsive to personal experiences, preferences, needs, goals and values of service users. Despite the growing recognition of the value of patient-reported outcome measures, they are rarely used as evaluation endpoints in person-centred care research and care practices. This paper contributes to knowledge by examining the opportunities and challenges of using patient-reported outcome measures to measure person-centred care. Our focus is not the collection and feedback of patient-reported outcomes to enact person-centred care. We discuss differences between patient- and person-reported outcomes and their role in assessing person-centred care. We also challenge some existing measurement practices and usage of existing patient-reported outcome measures. We critically discuss some potential consequences of current practices, and present possible solutions. We do not have all the answers, and we urge those working in the field of patient-reported measurement to collectively come together to find solutions. With this perspective article, we aim to start the conversation to think differently about how we evaluate person-centred care and propose areas of enquiry that incorporate patient-reported outcomes into the evaluation of person-centred care.",

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AU - Rutherford, Claudia

AU - Boehnke, Jan

AU - Greenhalgh, Joanne

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AU - McCance, Tanya

AU - McCormack, Brendan

PY - 2025/6/13

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N2 - Person-centred care refers to health care that is respectful of and responsive to personal experiences, preferences, needs, goals and values of service users. Despite the growing recognition of the value of patient-reported outcome measures, they are rarely used as evaluation endpoints in person-centred care research and care practices. This paper contributes to knowledge by examining the opportunities and challenges of using patient-reported outcome measures to measure person-centred care. Our focus is not the collection and feedback of patient-reported outcomes to enact person-centred care. We discuss differences between patient- and person-reported outcomes and their role in assessing person-centred care. We also challenge some existing measurement practices and usage of existing patient-reported outcome measures. We critically discuss some potential consequences of current practices, and present possible solutions. We do not have all the answers, and we urge those working in the field of patient-reported measurement to collectively come together to find solutions. With this perspective article, we aim to start the conversation to think differently about how we evaluate person-centred care and propose areas of enquiry that incorporate patient-reported outcomes into the evaluation of person-centred care.

AB - Person-centred care refers to health care that is respectful of and responsive to personal experiences, preferences, needs, goals and values of service users. Despite the growing recognition of the value of patient-reported outcome measures, they are rarely used as evaluation endpoints in person-centred care research and care practices. This paper contributes to knowledge by examining the opportunities and challenges of using patient-reported outcome measures to measure person-centred care. Our focus is not the collection and feedback of patient-reported outcomes to enact person-centred care. We discuss differences between patient- and person-reported outcomes and their role in assessing person-centred care. We also challenge some existing measurement practices and usage of existing patient-reported outcome measures. We critically discuss some potential consequences of current practices, and present possible solutions. We do not have all the answers, and we urge those working in the field of patient-reported measurement to collectively come together to find solutions. With this perspective article, we aim to start the conversation to think differently about how we evaluate person-centred care and propose areas of enquiry that incorporate patient-reported outcomes into the evaluation of person-centred care.

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KW - patient-reported outcomes

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KW - measurement framework

KW - research

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DO - 10.3389/frhs.2025.1578037

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VL - 5

JO - Frontiers in Health Services

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M1 - 1578037

ER -

Time is now to consider how we evaluate person-centred care—the role of patient-reported outcomes

Abstract

UN SDGs

Keywords

ASJC Scopus subject areas

Access to Document

Fingerprint

Research output

The LEADING guideline: Reporting standards for expert panel, best-estimate diagnosis, and longitudinal expert all data (LEAD) methods

A core outcome set for trials evaluating self-management interventions in people with severe mental illness and coexisting type 2 diabetes

Core outcome sets for trials of interventions to prevent and to treat multimorbidity in adults in low and middle-income countries: the COSMOS study

Activities

Quality assurance, quantitative, and qualitative evaluation methods for psychotherapeutic interventions including assessment instruments (annually)

Cite this