Use of UK health services by Gypsies, Roma, and Travellers: triangulation of two mixed methods studies

Lindsay Siebelt (Lead / Corresponding author), Cath Jackson, Alison McFadden, Lisa Dyson, Karl Atkin

Research output: Contribution to journalMeeting abstract

179 Downloads (Pure)

Abstract

Background: Gypsies, Roma, and Travellers (GRT) are less likely than the general population to access health services. The reasons are multiple, complex, and interlinked, and they exist at individual, provider, health system, and national levels. We report on two studies that explore GRT use of UK health services. Study 1 aimed to investigate barriers to, and facilitators of, immunisation, and identify interventions to promote uptake. Study 2 aimed to explore approaches that facilitate engagement and trust between GRT and health services, with maternity, early years, and child dental health services as exemplars.

Methods: Study 1, completed in 2016, involved in-depth interviews with 174 GRT from six communities and 39 service providers in Scotland and England, and intervention mapping and co-production workshops with 76 participants to prioritise interventions. Study 2, to be completed in 2017, involves systematic reviews and a realist synthesis; online consultation with 196 UK-based stakeholders; case studies involving interviews and focus groups with 44 GRT, 54 health-care professionals and 13 third sector staff in Scotland and England; and cross-sectoral workshops which will refine policy recommendations. Qualitative and quantitative analysis identified barriers and facilitators to receiving health care; and approaches to enhancing engagement and trust in health care. Ethics approval for study 1 was granted by National Research Ethics Service Committee Yorkshire and The Humber, Leeds East, and for study 2 the NHS Health Research Authority East Midlands, Leicester Central Research Ethics Committee (16/EM/0028).

Findings: Barriers to health care included discrimination, economic disadvantage, differences in cultural interpretations, language, and health literacy. Facilitators included trust in health professionals and intergenerational change towards valuing health services. Approaches to enhancing engagement included specialist workers and named professionals for GRT communities, cultural training for professionals, and tailored or flexible systems. Facilitating the research depended on collaborating with trusted gatekeepers, and both studies used co-production methods to ensure that study recommendations are grounded in practice realities and acceptable to stakeholders.

Interpretation: The findings provide advice for practitioners and policy makers engaging with GRT people, as well as insight on supporting other marginalised populations. Exploring the experience of GRT, service provision, and policy offers a substantiated account enabling public health to reflect on success or otherwise of interventions aimed at tackling inequalities.
Original languageEnglish
Pages (from-to)81
Number of pages1
JournalLancet
Volume390
Issue numberS81
Early online date27 Nov 2017
DOIs
Publication statusPublished - Nov 2017

Fingerprint

Roma
Health Services
Delivery of Health Care
Research Ethics Committees
Scotland
England
Health
Dental Health Services
Child Health Services
Interviews
Health Literacy
Education
Social Welfare

Cite this

Siebelt, Lindsay ; Jackson, Cath ; McFadden, Alison ; Dyson, Lisa ; Atkin, Karl. / Use of UK health services by Gypsies, Roma, and Travellers : triangulation of two mixed methods studies. In: Lancet. 2017 ; Vol. 390, No. S81. pp. 81.
@article{b5e496b6fc7f4bb89b2a035b563658f8,
title = "Use of UK health services by Gypsies, Roma, and Travellers: triangulation of two mixed methods studies",
abstract = "Background: Gypsies, Roma, and Travellers (GRT) are less likely than the general population to access health services. The reasons are multiple, complex, and interlinked, and they exist at individual, provider, health system, and national levels. We report on two studies that explore GRT use of UK health services. Study 1 aimed to investigate barriers to, and facilitators of, immunisation, and identify interventions to promote uptake. Study 2 aimed to explore approaches that facilitate engagement and trust between GRT and health services, with maternity, early years, and child dental health services as exemplars. Methods: Study 1, completed in 2016, involved in-depth interviews with 174 GRT from six communities and 39 service providers in Scotland and England, and intervention mapping and co-production workshops with 76 participants to prioritise interventions. Study 2, to be completed in 2017, involves systematic reviews and a realist synthesis; online consultation with 196 UK-based stakeholders; case studies involving interviews and focus groups with 44 GRT, 54 health-care professionals and 13 third sector staff in Scotland and England; and cross-sectoral workshops which will refine policy recommendations. Qualitative and quantitative analysis identified barriers and facilitators to receiving health care; and approaches to enhancing engagement and trust in health care. Ethics approval for study 1 was granted by National Research Ethics Service Committee Yorkshire and The Humber, Leeds East, and for study 2 the NHS Health Research Authority East Midlands, Leicester Central Research Ethics Committee (16/EM/0028).Findings: Barriers to health care included discrimination, economic disadvantage, differences in cultural interpretations, language, and health literacy. Facilitators included trust in health professionals and intergenerational change towards valuing health services. Approaches to enhancing engagement included specialist workers and named professionals for GRT communities, cultural training for professionals, and tailored or flexible systems. Facilitating the research depended on collaborating with trusted gatekeepers, and both studies used co-production methods to ensure that study recommendations are grounded in practice realities and acceptable to stakeholders.Interpretation: The findings provide advice for practitioners and policy makers engaging with GRT people, as well as insight on supporting other marginalised populations. Exploring the experience of GRT, service provision, and policy offers a substantiated account enabling public health to reflect on success or otherwise of interventions aimed at tackling inequalities.",
author = "Lindsay Siebelt and Cath Jackson and Alison McFadden and Lisa Dyson and Karl Atkin",
note = "Funding: Study 1 was funded by the National Institute for Health Research Health Technology Assessment Programme (12/17/05). Study 2 is funded by the Department of Health Policy Research Programme (Enhancing Gypsy/Travellers’ trust: using maternity and early years’ health services and dental health services as exemplars of mainstream service provision, PR-R8-0314-24002).",
year = "2017",
month = "11",
doi = "10.1016/S0140-6736(17)33016-7",
language = "English",
volume = "390",
pages = "81",
journal = "Lancet",
issn = "0140-6736",
publisher = "ELSEVIER SCIENCE INC",
number = "S81",

}

Use of UK health services by Gypsies, Roma, and Travellers : triangulation of two mixed methods studies. / Siebelt, Lindsay (Lead / Corresponding author); Jackson, Cath; McFadden, Alison; Dyson, Lisa; Atkin, Karl.

In: Lancet, Vol. 390, No. S81, 11.2017, p. 81.

Research output: Contribution to journalMeeting abstract

TY - JOUR

T1 - Use of UK health services by Gypsies, Roma, and Travellers

T2 - triangulation of two mixed methods studies

AU - Siebelt, Lindsay

AU - Jackson, Cath

AU - McFadden, Alison

AU - Dyson, Lisa

AU - Atkin, Karl

N1 - Funding: Study 1 was funded by the National Institute for Health Research Health Technology Assessment Programme (12/17/05). Study 2 is funded by the Department of Health Policy Research Programme (Enhancing Gypsy/Travellers’ trust: using maternity and early years’ health services and dental health services as exemplars of mainstream service provision, PR-R8-0314-24002).

PY - 2017/11

Y1 - 2017/11

N2 - Background: Gypsies, Roma, and Travellers (GRT) are less likely than the general population to access health services. The reasons are multiple, complex, and interlinked, and they exist at individual, provider, health system, and national levels. We report on two studies that explore GRT use of UK health services. Study 1 aimed to investigate barriers to, and facilitators of, immunisation, and identify interventions to promote uptake. Study 2 aimed to explore approaches that facilitate engagement and trust between GRT and health services, with maternity, early years, and child dental health services as exemplars. Methods: Study 1, completed in 2016, involved in-depth interviews with 174 GRT from six communities and 39 service providers in Scotland and England, and intervention mapping and co-production workshops with 76 participants to prioritise interventions. Study 2, to be completed in 2017, involves systematic reviews and a realist synthesis; online consultation with 196 UK-based stakeholders; case studies involving interviews and focus groups with 44 GRT, 54 health-care professionals and 13 third sector staff in Scotland and England; and cross-sectoral workshops which will refine policy recommendations. Qualitative and quantitative analysis identified barriers and facilitators to receiving health care; and approaches to enhancing engagement and trust in health care. Ethics approval for study 1 was granted by National Research Ethics Service Committee Yorkshire and The Humber, Leeds East, and for study 2 the NHS Health Research Authority East Midlands, Leicester Central Research Ethics Committee (16/EM/0028).Findings: Barriers to health care included discrimination, economic disadvantage, differences in cultural interpretations, language, and health literacy. Facilitators included trust in health professionals and intergenerational change towards valuing health services. Approaches to enhancing engagement included specialist workers and named professionals for GRT communities, cultural training for professionals, and tailored or flexible systems. Facilitating the research depended on collaborating with trusted gatekeepers, and both studies used co-production methods to ensure that study recommendations are grounded in practice realities and acceptable to stakeholders.Interpretation: The findings provide advice for practitioners and policy makers engaging with GRT people, as well as insight on supporting other marginalised populations. Exploring the experience of GRT, service provision, and policy offers a substantiated account enabling public health to reflect on success or otherwise of interventions aimed at tackling inequalities.

AB - Background: Gypsies, Roma, and Travellers (GRT) are less likely than the general population to access health services. The reasons are multiple, complex, and interlinked, and they exist at individual, provider, health system, and national levels. We report on two studies that explore GRT use of UK health services. Study 1 aimed to investigate barriers to, and facilitators of, immunisation, and identify interventions to promote uptake. Study 2 aimed to explore approaches that facilitate engagement and trust between GRT and health services, with maternity, early years, and child dental health services as exemplars. Methods: Study 1, completed in 2016, involved in-depth interviews with 174 GRT from six communities and 39 service providers in Scotland and England, and intervention mapping and co-production workshops with 76 participants to prioritise interventions. Study 2, to be completed in 2017, involves systematic reviews and a realist synthesis; online consultation with 196 UK-based stakeholders; case studies involving interviews and focus groups with 44 GRT, 54 health-care professionals and 13 third sector staff in Scotland and England; and cross-sectoral workshops which will refine policy recommendations. Qualitative and quantitative analysis identified barriers and facilitators to receiving health care; and approaches to enhancing engagement and trust in health care. Ethics approval for study 1 was granted by National Research Ethics Service Committee Yorkshire and The Humber, Leeds East, and for study 2 the NHS Health Research Authority East Midlands, Leicester Central Research Ethics Committee (16/EM/0028).Findings: Barriers to health care included discrimination, economic disadvantage, differences in cultural interpretations, language, and health literacy. Facilitators included trust in health professionals and intergenerational change towards valuing health services. Approaches to enhancing engagement included specialist workers and named professionals for GRT communities, cultural training for professionals, and tailored or flexible systems. Facilitating the research depended on collaborating with trusted gatekeepers, and both studies used co-production methods to ensure that study recommendations are grounded in practice realities and acceptable to stakeholders.Interpretation: The findings provide advice for practitioners and policy makers engaging with GRT people, as well as insight on supporting other marginalised populations. Exploring the experience of GRT, service provision, and policy offers a substantiated account enabling public health to reflect on success or otherwise of interventions aimed at tackling inequalities.

U2 - 10.1016/S0140-6736(17)33016-7

DO - 10.1016/S0140-6736(17)33016-7

M3 - Meeting abstract

VL - 390

SP - 81

JO - Lancet

JF - Lancet

SN - 0140-6736

IS - S81

ER -