Using patient reported outcome measures in health services: a qualitative study on including people with low literacy skills and learning disabilities

Deepa Jahagirdar, Thilo Kroll, Karen Ritchie, Sally Wyke

    Research output: Contribution to journalArticlepeer-review

    20 Citations (Scopus)

    Abstract

    Background
    Patient reported outcome measures (PROMs) are self-report measures of health status increasingly promoted for use in healthcare quality improvement. However people with low literacy skills or learning disabilities may find PROMs hard to complete. Our study investigated stakeholder views on the accessibility and use of PROMs to develop suggestions for more inclusive practice.

    Methods
    Taking PROMs recommended for chronic obstructive pulmonary disease (COPD) as an example, we conducted 8 interviews with people with low literacy skills and/or learning disabilities, and 4 focus groups with 20 health professionals and people with COPD. Discussions covered the format and delivery of PROMs using the EQ-5D and St George Respiratory Questionnaire as prompts. Thematic framework analysis focused on three main themes: Accessibility, Ease of Use, and Contextual factors.

    Results
    Accessibility included issues concerning the questionnaire format, and suggestions for improvement included larger font sizes and more white space. Ease of Use included discussion about PROMs’ administration. While health professionals suggested PROMs could be completed in waiting rooms, patients preferred settings with more privacy and where they could access help from people they know. Contextual Factors included other challenges and wider issues associated with completing PROMs. While health professionals highlighted difficulties created by the system in managing patients with low literacy/learning disabilities, patient participants stressed that understanding the purpose of PROMs was important to reduce intimidation.

    Conclusions
    Adjusting PROMs’ format, giving an explicit choice of where patients can complete them, and clearly conveying PROMs’ purpose and benefit to patients may help to prevent inequality when using PROMs in health services.

    Original languageEnglish
    Pages (from-to)431
    Number of pages8
    JournalBMC Health Services Research
    Volume12
    DOIs
    Publication statusPublished - 2012

    Keywords

    • Qualitative Research
    • Quality Improvement
    • Educational Status
    • Questionnaires
    • Humans
    • Health Status
    • Outcome and Process Assessment (Health Care)
    • Learning Disorders
    • Focus Groups
    • Self Report
    • Interviews as Topic
    • Middle Aged
    • Female
    • Healthcare Disparities
    • Male
    • Pulmonary Disease, Chronic Obstructive

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