What do you want to know?: Investigating the information requirements of patient supporters

Wendy Moncur; Judith Masthoff; Ehud Reiter

doi:10.1109/CBMS.2008.36

What do you want to know? Investigating the information requirements of patient supporters

Wendy Moncur, Judith Masthoff, Ehud Reiter

Research output: Chapter in Book/Report/Conference proceeding › Other chapter contribution

9 Citations (Scopus)

Abstract

There is a vast amount of data associated with any one patient. It is challenging for medical staff to understand all this data. It is even harder for a lay person, who may not even know what medical terms mean. The research project BabyTalk-Clan aims to create personalized summaries of data for a lay audience. It uses sensitive, highly-detailed clinical data relating to a patient. This includes medication given, test results, notes made by medical staff, and continuous physiological signals such as heart rate. We took a qualitative approach to knowledge acquisition for user requirements. Using interviews and a focus group within a Grounded Theory methodology, we discovered that most lay users want only a very high-level summary of the baby's state. What lay users do want is information about how the parents are coping, and what support they need. Findings were cross-validated through a questionnaire. ©2008 IEEE.

Original language	English
Title of host publication	Computer-Based Medical Systems, 2008. CBMS '08. 21st IEEE Symposium on Computer-Based Medical Systems
Editors	S Puuronen, M Pechenizkiy, A Tsymbal, DJ Lee
Place of Publication	Los Alamitos
Publisher	IEEE Computer Society
Pages	443-448
Number of pages	6
ISBN (Print)	9780769531656
DOIs	https://doi.org/10.1109/CBMS.2008.36
Publication status	Published - 2008
Event	21st IEEE International Symposium on Computer-Based Medical Systems - Jyvaskyla, Finland Duration: 17 Jun 2008 → 19 Jun 2008 http://cbms2008.it.jyu.fi/

Conference

Conference	21st IEEE International Symposium on Computer-Based Medical Systems
Abbreviated title	CBMS 2008
Country/Territory	Finland
City	Jyvaskyla
Period	17/06/08 → 19/06/08
Internet address	http://cbms2008.it.jyu.fi/

Access to Document

10.1109/CBMS.2008.36

Cite this

Moncur, W., Masthoff, J., & Reiter, E. (2008). What do you want to know? Investigating the information requirements of patient supporters. In S. Puuronen, M. Pechenizkiy, A. Tsymbal, & DJ. Lee (Eds.), Computer-Based Medical Systems, 2008. CBMS '08. 21st IEEE Symposium on Computer-Based Medical Systems (pp. 443-448). IEEE Computer Society. https://doi.org/10.1109/CBMS.2008.36

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note = "21st IEEE International Symposium on Computer-Based Medical Systems, CBMS 2008 ; Conference date: 17-06-2008 Through 19-06-2008",

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Moncur, W, Masthoff, J & Reiter, E 2008, What do you want to know? Investigating the information requirements of patient supporters. in S Puuronen, M Pechenizkiy, A Tsymbal & DJ Lee (eds), Computer-Based Medical Systems, 2008. CBMS '08. 21st IEEE Symposium on Computer-Based Medical Systems. IEEE Computer Society, Los Alamitos, pp. 443-448, 21st IEEE International Symposium on Computer-Based Medical Systems, Jyvaskyla, Finland, 17/06/08. https://doi.org/10.1109/CBMS.2008.36

What do you want to know? Investigating the information requirements of patient supporters. / Moncur, Wendy; Masthoff, Judith; Reiter, Ehud.
Computer-Based Medical Systems, 2008. CBMS '08. 21st IEEE Symposium on Computer-Based Medical Systems. ed. / S Puuronen; M Pechenizkiy; A Tsymbal; DJ Lee. Los Alamitos: IEEE Computer Society, 2008. p. 443-448.

Research output: Chapter in Book/Report/Conference proceeding › Other chapter contribution

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AB - There is a vast amount of data associated with any one patient. It is challenging for medical staff to understand all this data. It is even harder for a lay person, who may not even know what medical terms mean. The research project BabyTalk-Clan aims to create personalized summaries of data for a lay audience. It uses sensitive, highly-detailed clinical data relating to a patient. This includes medication given, test results, notes made by medical staff, and continuous physiological signals such as heart rate. We took a qualitative approach to knowledge acquisition for user requirements. Using interviews and a focus group within a Grounded Theory methodology, we discovered that most lay users want only a very high-level summary of the baby's state. What lay users do want is information about how the parents are coping, and what support they need. Findings were cross-validated through a questionnaire. ©2008 IEEE.

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What do you want to know? Investigating the information requirements of patient supporters

Abstract

Conference

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A Model for the Provision of Adaptive eHealth Information Across the Personal Social Network

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What do you want to know? Investigating the information requirements of patient supporters

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Conference

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Student theses

A Model for the Provision of Adaptive eHealth Information Across the Personal Social Network

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