What do you want to know? Investigating the information requirements of patient supporters

Wendy Moncur, Judith Masthoff, Ehud Reiter

    Research output: Chapter in Book/Report/Conference proceedingOther chapter contribution

    9 Citations (Scopus)


    There is a vast amount of data associated with any one patient. It is challenging for medical staff to understand all this data. It is even harder for a lay person, who may not even know what medical terms mean. The research project BabyTalk-Clan aims to create personalized summaries of data for a lay audience. It uses sensitive, highly-detailed clinical data relating to a patient. This includes medication given, test results, notes made by medical staff, and continuous physiological signals such as heart rate. We took a qualitative approach to knowledge acquisition for user requirements. Using interviews and a focus group within a Grounded Theory methodology, we discovered that most lay users want only a very high-level summary of the baby's state. What lay users do want is information about how the parents are coping, and what support they need. Findings were cross-validated through a questionnaire. ©2008 IEEE.
    Original languageEnglish
    Title of host publicationComputer-Based Medical Systems, 2008. CBMS '08. 21st IEEE Symposium on Computer-Based Medical Systems
    EditorsS Puuronen, M Pechenizkiy, A Tsymbal, DJ Lee
    Place of PublicationLos Alamitos
    PublisherIEEE Computer Society
    Number of pages6
    ISBN (Print)9780769531656
    Publication statusPublished - 2008
    Event21st IEEE International Symposium on Computer-Based Medical Systems - Jyvaskyla, Finland
    Duration: 17 Jun 200819 Jun 2008


    Conference21st IEEE International Symposium on Computer-Based Medical Systems
    Abbreviated titleCBMS 2008
    Internet address

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