What is good personal assistance made of? Results of a European survey

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    Abstract

    This article presents the results of a survey on personal assistance (PA) for disabled people, conducted among PA users and members of the independent living movement in Europe. The survey was developed and implemented in the spirit of emancipatory disability research, and was informed by the social model of disability and the independent living philosophy. Participants were asked to assess a series of characteristics of PA in terms of their impact on users’ choice and control. Their responses help identify which characteristics of PA are considered to be enablers of choice and control, which characteristics are perceived as barriers and which characteristics elicit disagreement or lack of consensus among PA users and members of the independent living movement in Europe. Plans for using the results of the survey to develop a tool for evaluating PA schemes are also discussed.

    Original languageEnglish
    Pages (from-to)1-24
    Number of pages24
    JournalDisability & Society
    Volume35
    Issue number1
    Early online date8 Jun 2019
    DOIs
    Publication statusPublished - 8 Jun 2019

    Keywords

    • disability policy
    • emancipatory disability research
    • independent living
    • personal assistance
    • Social model of disability

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