What is the health and well-being burden for parents living with a child with ADHD in the United Kingdom?

Tessa Peasgood, Anupam Bhardwaj, John E. Brazier, Katie Biggs (Lead / Corresponding author), David Coghill, David Daley, Cindy L. Cooper, Cyril De Silva, Val Harpin, Paul Hodgkins, Amulya Nadkarni, Juliana Setyawan, Edmund J. S. Sonuga-Barke

Research output: Contribution to journalArticlepeer-review

14 Citations (Scopus)
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Objective: To explore the burden associated with childhood ADHD in a large observational study. Methods: We recruited familes with at least one child (6-18 years) with ADHD via 15 NHS trusts in the UK, and collected data from all family members. We made careful adjustments to ensure a like-for-like comparison with two different control groups, and explored the impact of controlling for a positive parental/carer ADHD screen, employment, and relationship status. Results: We found significant negative impacts of childhood ADHD on parents'/carers' hours and quality of sleep, satisfaction with leisure time, and health-related quality of life (measured by the EuroQol-5D [EQ-5D]). We found a decrement in life satisfaction, mental well-being (as measured by the Short-Warwick Edinburgh Mental Well-Being Scale [S-WEMWBS]), and satisfaction with intimate relationships, but this was not always robust across the different control groups. We did not find any decrement in satisfaction with health, self-reported health status, or satisfaction with income. Conclusion: The study quantifies the impact on the health and well-being of parents living with a child with ADHD using a survey of families attending ADHD clinics in the United Kingdom.

Original languageEnglish
Pages (from-to)1962-1976
Number of pages15
JournalJournal of Attention Disorders
Issue number14
Early online date19 Jun 2020
Publication statusPublished - Dec 2021


  • ADHD
  • Parents
  • Carers
  • well-being
  • EQ-5D


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