Projects per year
Abstract
As health data infrastructure improves, we have the opportunity to link increasing volumes of data in order to investigate important health problems. This is perhaps most pertinent when looking at the experiences and outcomes of our most disadvantaged groups, who are often invisible in data obtained through primary research. Whilst these data offer enormous opportunity, there are also ethical implications in their use, which are less frequently discussed than in relation to their qualitative counterparts. As a diverse group of clinicians and academics working across public health, we share our experience and understanding of how we can improve our reflexivity in health data science and ensure that research in this area is ethically conducted in co-production with the people whose data we are using. We discuss the potential opportunities, challenges and impacts of using administrative data to investigate marginalised populations.
Original language | English |
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Pages (from-to) | 1-4 |
Number of pages | 4 |
Journal | Big Data and Society |
Volume | 11 |
Issue number | 4 |
Early online date | 1 Dec 2024 |
DOIs |
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Publication status | Published - Dec 2024 |
Keywords
- Marginalised populations
- ethics
- co-production
- public engagement
- vulnerable populations
- drug use
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Dive into the research topics of 'With great (statistical) power comes great responsibility: A comment on the ethics of using administrative data to investigate marginalised populations'. Together they form a unique fingerprint.Projects
- 1 Finished
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Utilising Linked Administrative Datasets to Explore the Developmental Pathways of Children Born to Women Who Use Opioids in Pregnancy
Marryat, L. (Investigator)
11/07/21 → 10/07/24
Project: Research